Using journey maps to understand patient-reported outcome measures in the cancer journey

• Published in: Canadian oncology nursing journal Vol. 34; no. 4; p. 443
• Main Authors: Jae-Yung Kwon, Moynihan, Melissa, Wolff, Angela C, Irlbacher, Geraldine, Joseph, Amanda L, Wilson, Lorraine, Horlock, Hilary, Hung, Lillian, Lambert, Leah K, Lau, Francis, Sawatzky, Richard
• Format: Journal Article
• Language: English; French
• Published: Vancouver Canadian Association of Nurses in Oncology 01.01.2024
• ISSN: 1181-912X; 2368-8076

Purpose:The purpose of this qualitative study is to demonstrate the use of patient-reported outcome measure-based journey maps in facilitating clinicians’ ability to communicate with patients about their well-being at each phase of their cancer journey.Methods: Individual semi-structured online and phone interviews were conducted with older adults in British Columbia, Canada. Participants (n = 6) were asked to describe their cancer experiences associated with their well-being score using the Edmonton Symptom Assessment System revised questionnaire throughout their cancer journey (i.e., pre-diagnosis, diagnosis, treatment, to post-treatment).Results:Six older adults who received cancer treatment were interviewed. Six journey maps were developed with evidence of fluctuation in participants’ level of well-being through their cancer journeys.Conclusion:Journey maps can facilitate patient-clinician communication for tailoring interventions and draw clinicians’ attention to additional prompts to better understand patients’ well-being throughout the cancer journey.DOI:10.5737/23688076344443