Ethical principles and guidelines for gerontechnology research & development for persons with Alzheimer’s disease and their caregivers

Abstract Innovative technologies are rapidly emerging that offer caregivers the support and means to assist older adults with cognitive impairment to continue living “at home.” Technology research and development efforts applied to older adults with dementia invoke special grant review and instituti...

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Published inAlzheimer's & dementia Vol. 3; no. 3; pp. 217 - 226
Main Authors Mahoney, Diane F, Purtilo, Ruth B, Webbe, Frank M, Alwan, Majd, Bharucha, Ashok J, Adlam, Tim D, Jimison, Holly B, Turner, Beverly, Becker, S. Ann
Format Journal Article
LanguageEnglish
Published 2007
Subjects
Neurology
Institutional Review Boards
Grant reviewers
Translational research
Gerontechnology
Caregiving
Independent living
Technology and aging
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Summary:Abstract Innovative technologies are rapidly emerging that offer caregivers the support and means to assist older adults with cognitive impairment to continue living “at home.” Technology research and development efforts applied to older adults with dementia invoke special grant review and institutional review board concerns, to ensure not only safe but also ethically appropriate interventions. Evidence is emerging, however, that tensions are growing between innovators and reviewers. Reviewers with antitechnology biases are in a position to stifle needed innovation. Technology developers who fail to understand the clinical and caregiving aspects of dementia may design applications that are not in alignment with users’ capabilities. To bridge this divide, we offer an analysis of the ethical issues surrounding home monitoring, a model framework, and ethical guidelines for technology research and development for persons with Alzheimer’s disease and their caregivers.
ISSN:1552-5260
DOI:10.1016/j.jalz.2007.04.388