Construction of a theoretical framework for the downstream effects of social alienation in young-onset dementia patients based on grounded theory

• Published in: Yixue xinzhi zazhi Vol. 34; no. 7; pp. 796 - 806
• Main Authors: KANG Yun, SHAO Yan, PENG Guihai, ZHU Shuzhen, LI Longti
• Format: Journal Article
• Language: Chinese
• Published: Editorial Office of New Medicine 01.07.2024
• Subjects: construction of theoretical framework; downstream effect; grounded theory; social alienation; young-onset dementia
• ISSN: 1004-5511
• DOI: 10.12173/j.issn.1004-5511.202310062

Objective To explore and construct a theoretical framework for the downstream effects of social alienation in youny-onset dementia (YOD) patients, based on grounded theory methodology.Methods Purpose sampling was employed, and data were collected from January to March 2023 at 3 top tertiary hospitals and 6 community health service centers in Shiyan city, patients with YOD and their caregivers at different levels and stages of cognitive function of the disease courses as study subjects. Data were gathered using semi-structured interviews and analyzed through procedural grounded theory methods using NVIVO 12.0 software for open, axial, and selective coding to test the saturation of the theory.Results Cognitive decline process, diminished occupational abilities, emotional isolation and psychological stress, shrinking social activities and interactions, declining life skills and quality, and increased need for medical and social support were the six main dornains of the core category "social alienation downstream