OP0167 EULAR POINTS TO CONSIDER FOR PATIENT EDUCATION, PAIN MANAGEMENT AND PHYSICAL ACTIVITY ADAPTED TO THE SELF-MANAGEMENT OF JUVENILE-ONSET RHEUMATIC AND MUSCULOSKELETAL DISEASES DURING TRANSITIONAL CARE. THE EULAR MOVE-UP PROJECT

• Published in: Annals of the rheumatic diseases Vol. 82; no. Suppl 1; p. 111
• Main Authors: Prieto-Moreno, R, Courel-Ibañez, J, Briones-Vozmediano, E, Angevare, S, Anton, J, Ariza-Vega, P, Bini, I, Clemente, D, Correia, M, Costello, W, Diederik, D C, Domjan, A, L Leon Mateos, Marques, A, Minden, K, Mourão, A F, Najm, A, Özen, S, Pimentel, G, Saleem, Z, Vetrovsky, T, Wulffraat, N, Zacarias, A, Prior, Y, Carmona, L, Estevez-Lopez, F
• Format: Journal Article
• Language: English
• Published: London BMJ Publishing Group LTD 01.06.2023
• Subjects: Body composition; Decision making; Drug therapy; Exercise; Life span; Medical personnel; Musculoskeletal diseases; Pain; Pain management; Patient education; Patients; Physical activity; Rheumatology; Task forces; Telemedicine
• ISSN: 0003-4967; 1468-2060
• DOI: 10.1136/annrheumdis-2023-eular.264

BackgroundThe EULAR task force “Implementation of a mobile health app for the self-management of juvenile-onset rheumatic and musculoskeletal diseases (jRMDs) during transitional care” aims at designing, developing and implementing a self-management program through a smartphone app (i.e., the EULAR Move-Up app). The first step of this task force was to adapt the current EULAR recommendations/points originally developed for adults, to young people (YP) with jRMDs.ObjectivesAdapting EULAR recommendations/points for patient education, pain management and physical activity for self-management of jRMDs during transitional care.MethodsA multidisciplinary taskforce of 25 members from 11 European countries was convened. Using a Delphi technique, the level of agreement was established by anonymous online voting in three rounds.ResultsFour overarching principles and 8 points to consider were formulated (Table 1). The agreement was high, ranging from 8.7 to 9.9.ConclusionThis work will feed into an evidence-based framework to inform the development of the EULAR Move-Up app aiming at improving the quality of transitional care of jRMDs.Table 1.Overarching principles and points to consider for the self-management of juvenile-onset rheumatic and musculoskeletal diseases during transitional careOverarching principlesAgreement (0 to 10)1YP with jRMDs should be offered education, physical activity advice and pain management recommendations and provided with access to relevant resources during transitional care, as soon as possible following the diagnosis9.62Health professionals in rheumatology should consider the use of digital health interventions in transitional care to support self-management9.53The content and delivery of transitional care should be individually tailored and needs-based according to the patients’ priorities, preferences, capabilities and resources9.64Transitional care interventions should have clear personalised aims, which should be evaluated over time, preferably by a combination of objective and subjective (patient-reported outcome measures) assessments9.9Adapted points to consider in education1Education is a planned interactive learning process designed to support and enable YP with jRMDs to manage their health and chronic condition, and optimise their health and well-being during transitional care9.52Education should consist of a variety of learning formats and the programme should be designed through a shared decision-making process9.43Education should include the evaluation of outcomes reflecting both the knowledge acquired and, most importantly, translation to behaviour change8.7Adapted points to consider in pain management4All patients and their carers should be offered education on the importance of maintaining healthy body composition and explained that unhealthy body composition could contribute to pain and disability9.85Non-pharmacological approaches (e.g., physical activity, lifestyle change, psychological interventions) should be prioritised in newly-diagnosed patients and those in transitional care. If indicated, the patient should receive pharmacological treatment according to the most recent recommendations9.6Adapted points to consider on physical activity6Physical activity is part of a healthy lifestyle and should be optimised during the lifespan of individuals of all ages9.87Physical activity has health benefits for YP with jRMDs during transitional care and helps establishing healthy behaviours and lifestyles during adulthood9.88Healthcare providers should consider different formats of delivery of physical activity, in line with YP’s preferences and disease requirements9.6YP = Young people; jRMDs = juvenile-onset rheumatic and musculoskeletal diseases;REFERENCES:NIL.Acknowledgements:NIL.Disclosure of InterestsRafael Prieto-Moreno: None declared, Javier Courel-Ibañez: None declared, Erica Briones-Vozmediano: None declared, Saskya Angevare: None declared, Jordi Anton: None declared, Patrocinio Ariza-Vega: None declared, Ilaria Bini: None declared, Daniel Clemente: None declared, Matilde Correia: None declared, Wendy Costello: None declared, De Cock Diederik: None declared, Andrea Domjan: None declared, Leticia Leon Mateos: None declared, Andrea Marques: None declared, Kirsten Minden Grant/research support from: Honoraria from Pfizer, Novartis and Medac., Ana Filipa Mourão: None declared, Aurelie Najm: None declared, Seza Özen: None declared, Georgina Pimentel: None declared, Zainab Saleem: None declared, Tomas Vetrovsky: None declared, Nico Wulffraat: None declared, Andrea Zacarias: None declared, Yeliz Prior: None declared, Loreto Carmona: None declared, Fernando Estevez-Lopez: None declared.