Design and implementation of a transdisciplinary care model for patients with hereditary angioedema, in a Colombian health institution

Describe the design and implementation of a transdisciplinary care model for patients with hereditary angioedema in Colombia. Descriptive longitudinal observational study. 140 patients with hereditary angioedema were included in a transdisciplinary care model for one year. Seizure rates, hospitaliza...

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Bibliographic Details
Published inRevista alergia Mexico (Tecamachalco, Puebla, Mexico : 1993) Vol. 71; no. 1; p. 80
Main Authors Prada-Moreno, Valentina, Wilches-Gutiérrez, Juan David, Arias-Osorio, Diana Roció
Format Journal Article
LanguageSpanish
Published Mexico 01.02.2024
Subjects
Adolescent
Adult
Angioedemas, Hereditary - therapy
Child
Colombia
Female
Humans
Interdisciplinary Communication
Longitudinal Studies
Male
Middle Aged
Patient Care Team
Quality of Life
Young Adult
Colombia
Hereditary angioedema
Care model
Transdisciplinary
Orphan diseases
Quality of life
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Summary:Describe the design and implementation of a transdisciplinary care model for patients with hereditary angioedema in Colombia. Descriptive longitudinal observational study. 140 patients with hereditary angioedema were included in a transdisciplinary care model for one year. Seizure rates, hospitalizations, emergency room visits, quality of life, and pharmacological adherence were measured. The model was associated with reductions of 76% in seizures, 66% in hospitalizations, and 87% in emergency room visits. Pharmacological adherence increased 19% and was complete after four months. The quality of life increased significantly. Hereditary angioedema is an orphan disease that requires a comprehensive approach for effective care.
ISSN:2448-9190
DOI:10.29262/ram.v71i1.1378