Ethical problems in genetic epidemiology

Two are the principal ethical problems to be faced by the genetic epidemiological research. One has to do directly with the "creation" and "managing" of genetic information about the basic unit of the genetic epidemiological studies, that is the family. This will possibly aggrava...

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Bibliographic Details
Published inAnnali dell'Istituto superiore di sanita Vol. 34; no. 2; p. 245
Main Author Stazi, M A
Format Journal Article
LanguageItalian
Published Italy 1998
Subjects
Ethics, Medical
Family Health
Genetic Testing
Genetics, Medical - standards
Human Genome Project
Humans
Molecular Epidemiology - standards
Predictive Value of Tests
Public Health
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Summary:Two are the principal ethical problems to be faced by the genetic epidemiological research. One has to do directly with the "creation" and "managing" of genetic information about the basic unit of the genetic epidemiological studies, that is the family. This will possibly aggravate all the difficulties regarding the subject recruitment, the informed consensus, the confidentiality of genetic results as well as their disclosure to study participants. The other concern is the potential conflict between the interests of the individual and those of the society that could arise when a screening program focused to high risk groups is implemented. Both the aspects will be discussed, according to the recent literature. The methodological work done by Muin Koury on genetic screening and public health issues will be presented.
Bibliography:ObjectType-Article-2
SourceType-Scholarly Journals-1
ObjectType-Feature-1
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ISSN:0021-2571