The Dutch EPS Registry: Increasing the knowledge of encapsulating peritoneal sclerosis

Encapsulating peritoneal sclerosis (EPS) is a rare condition characterised by fibrotic thickening of the visceral peritoneum, leading to encapsulating of the intestines with partial or total intestinal obstruction. EPS is a serious complication of peritoneal dialysis (PD) with high morbidity and a m...

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Published inNetherlands journal of medicine Vol. 67; no. 8; pp. 359 - 362
Main Authors KORTE, M. R, BOESCHOTEN, E. W, BETJES, M. G. H
Format Journal Article
LanguageEnglish
Published Alphen aan den Rijn Van zuiden 01.09.2009
Subjects
Access to Information
Biological and medical sciences
Data Collection
Epidemiology
Evidence-Based Medicine
General aspects
Health Knowledge, Attitudes, Practice
Humans
Incidence
Medical sciences
Multivariate Analysis
Netherlands - epidemiology
Peritoneal Dialysis - adverse effects
Peritoneal Diseases - epidemiology
Peritoneal Diseases - etiology
Peritoneal Diseases - mortality
Peritoneum - pathology
Public health. Hygiene
Public health. Hygiene-occupational medicine
Registries
Risk Factors
Sclerosis - pathology
Netherlands
Europe
Medicine
registry
risk factors
Register
Risk factor
EPS
Knowledge
Epidemiology
Dutch
Sclerosis
Incidence
Peritoneum
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Summary:Encapsulating peritoneal sclerosis (EPS) is a rare condition characterised by fibrotic thickening of the visceral peritoneum, leading to encapsulating of the intestines with partial or total intestinal obstruction. EPS is a serious complication of peritoneal dialysis (PD) with high morbidity and a mortality exceeding 50%. At present, there is uncertainty concerning the incidence and the risk factors involved in the development of EPS. To address these questions a nationwide registry has been initiated. The primary goals of the registry are to record the incidence of EPS and investigate the association of different variables, such as PD duration, medication, dialysis solutions and kidney transplantation with EPS. The registry will improve the knowledge of EPS and will serve to develop guidelines and necessary management strategies. From the registry different research activities can be initiated. A major challenge lies in the establishment of criteria that allow a timely diagnosis of EPS. At present, there are no diagnostic tools that can accurately detect EPS at an early stage. For this reason, besides patients with proven EPS, the clinical suspicion of EPS will be a sufficient criterion for inclusion in the registry. This nationwide EPS registry is currently enrolling patients.
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ISSN:0300-2977
1872-9061