Understanding the Knowledge Gap Experienced by U.S. Safety Net Patients in Teleretinal Screening

• Published in: AMIA ... Annual Symposium proceedings Vol. 2016; pp. 590 - 599
• Main Authors: George, Sheba M, Hayes, Erin Moran, Fish, Allison, Daskivich, Lauren Patty, Ogunyemi, Omolola I
• Format: Journal Article
• Language: English
• Published: United States American Medical Informatics Association 2016
• Subjects: Adult; Diabetes Mellitus; Diabetic Retinopathy - diagnosis; Female; Focus Groups; Health Literacy; Health Services Accessibility; Humans; Los Angeles; Male; Middle Aged; Socioeconomic Factors; Telemedicine
• ISSN: 1559-4076

Safety-net patients' socioeconomic barriers interact with limited digital and health literacies to produce a "knowledge gap" that impacts the delivery of healthcare via telehealth technologies. Six focus groups (2 African- American and 4 Latino) were conducted with patients who received teleretinal screening in a U.S. urban safety-net setting. Focus groups were analyzed using a modified grounded theory methodology. Findings indicate that patients' knowledge gap is primarily produced at three points during the delivery of care: (1) exacerbation of patients' pre-existing personal barriers in the clinical setting; (2) encounters with technology during screening; and (3) lack of follow up after the visit. This knowledge gap produces confusion, potentially limiting patients' perceptions of care and their ability to manage their own care. It may be ameliorated through delivery of patient education focused on both disease pathology and specific role of telehealth technologies in disease management.