Developing a relational XML schema for sharing HIV clinical data

Access to multi-site clinical data regarding treatment and outcomes of HIV-infected patients in routine care is required to support clinical research to improve the treatment of HIV. As part of the NIAID-funded CFAR Network of Integrated Clinical Systems (CNICS), we have developed a relational XML S...

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Bibliographic Details
Published inAMIA ... Annual Symposium proceedings Vol. 2005; p. 943
Main Authors Drozd, D R, Lober, W B, Kitahata, M M, Smith, K I, Van Rompaey, S E
Format Journal Article
LanguageEnglish
Published United States American Medical Informatics Association 2005
Subjects
Databases as Topic - organization & administration
HIV Infections
Humans
Information Systems - organization & administration
Medical Record Linkage - methods
Medical Records Systems, Computerized - organization & administration
Programming Languages
United States
United States
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Summary:Access to multi-site clinical data regarding treatment and outcomes of HIV-infected patients in routine care is required to support clinical research to improve the treatment of HIV. As part of the NIAID-funded CFAR Network of Integrated Clinical Systems (CNICS), we have developed a relational XML Schema to extend the existing observational research repository and to integrate real-time clinical information from electronic medical records (EMRs) at six Centers for AIDS Research (CFAR) into the repository. The schema will aid the expansion of the research repository beyond the initial sites, and the development process may facilitate the use of multi-site repositories to study other chronic diseases.
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ISSN:1559-4076