Development and reliability of the THAICLEFT Quality of Life Questionnaire for children with cleft lip/palate and families

The objective of this study was to develop and test the reliability of the THAICLEFT Quality of Life (QoL) questionnaire for families of children coping with the problems associated with cleft lip/palate (CLP). After reviewing the literature on QoL measurements, the THAICLEFT QoL questionnaire was d...

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Bibliographic Details
Published inJournal of the Medical Association of Thailand Vol. 93 Suppl 4; p. S16
Main Authors Patjanasoontorn, Niramol, Pradubwong, Suteera, Mongkoltawornchai, Siriporn, Phetcharat, Tharinee, Chowchuen, Bowornsilp
Format Journal Article
LanguageEnglish
Published Thailand 01.10.2010
Subjects
Adaptation, Psychological
Child
Cleft Lip - diagnosis
Cleft Lip - economics
Cleft Lip - psychology
Cleft Palate - diagnosis
Cleft Palate - economics
Cleft Palate - psychology
Family - psychology
Health Services Needs and Demand
Humans
Pilot Projects
Quality of Life - psychology
Registries
Reproducibility of Results
Surveys and Questionnaires - standards
Young Adult
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Summary:The objective of this study was to develop and test the reliability of the THAICLEFT Quality of Life (QoL) questionnaire for families of children coping with the problems associated with cleft lip/palate (CLP). After reviewing the literature on QoL measurements, the THAICLEFT QoL questionnaire was developed. The 27 families registered with the Tawanchai CLP service registry completed the questionnaire. The Cronbach's alpha, i.e., the internal consistency and reliability, of 24 Quality of Life questionnaires was calculated. Values > 0.7 are considered acceptable and the value of the THAICLEFT QoL questionnaire was 0.861. Using the THAICLEFT QoL questionnaire can help the healthcare provider to support parents and understand whether they are able to care for the patients and their psycho-economic needs.
ISSN:0125-2208