Contradictions of public health policies geared to rare disorders: the example of the Osteogenesis Imperfecta Treatment Program in the Brazilian Unified Health System

The scope of this paper is to examine the process of consolidation of a public health policy in Brazil geared to a rare disorder, namely osteogenesis imperfecta, the treatment for which has fallen under the responsibility of the Brazilian Unified Health System (SUS) after the publication of Minister...

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Published inCiência & saude coletiva Vol. 19; no. 2; pp. 475 - 480
Main Authors de Lima, Maria Angelica de Faria Domingues, Horovitz, Dafne Dain Gandelman
Format Journal Article
LanguagePortuguese
Published Rio de Janeiro Associacao Brasileira de Pos-Graduacao em Saude Coletiva - ABRASCO 01.02.2014
Associação Brasileira de Saúde Coletiva
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Public health
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Summary:The scope of this paper is to examine the process of consolidation of a public health policy in Brazil geared to a rare disorder, namely osteogenesis imperfecta, the treatment for which has fallen under the responsibility of the Brazilian Unified Health System (SUS) after the publication of Ministerial Ruling GM/MS2305/2001. The implementation of this law has been accompanied by many contradictions, especially with respect to therapeutic decisions and the strengthening of the specialized network for addressing this condition. These attitudes are clearly shown both by the drafting process and the final text of the new law (Ministerial Ruling 714/2010). Key words Osteogenesis imperfecta, Public health policy, Rare disorders
ISSN:1413-8123
1678-4561
DOI:10.1590/1413-81232014192.15582012