Ethical implications of defining longstanding anorexia nervosa

• Published in: Journal of eating disorders Vol. 12; no. 1; pp. 77 - 6
• Main Authors: Voswinkel, Marthe M, Hanegraaff, Simone M, Mares, Suzanne H.W, Wezenberg, Elke, van Delden, Johannes J.M, van Elburg, Annemarie A
• Format: Journal Article
• Language: English
• Published: London BioMed Central Ltd 11.06.2024; BioMed Central; BMC
• Subjects: Anorexia nervosa; Comment; Epistemic injustice; Ethics; Lived experience perspective; SE-AN
• ISSN: 2050-2974; 2050-2974
• DOI: 10.1186/s40337-024-01040-w

The label severe and enduring anorexia nervosa (SE-AN) is widely used in the literature on longstanding anorexia nervosa (AN). However, the process of constructing the criteria and the use of the label SE-AN has ethical implications that have not been taken into account. Through combining existing literature and lived experience perspective, this paper addresses to what extent the current criteria do and do not reflect the lived experience. Arguments are presented on why the process of constructing the criteria for SE-AN and the application of the label can be both identified as, and give rise to, epistemic injustice. Epistemic injustice is an injustice that is done to a person as an individual with the capacity of acquiring and sharing knowledge. This type of injustice can occur at any stage of an interaction between people in which knowledge is shared with one another. The paper concludes by giving suggestions on how to pursue epistemic justice in the process of defining longstanding AN. Keywords: Anorexia nervosa, SE-AN, Ethics, Lived experience perspective, Epistemic injustice