Cross-cultural Adaptation of the Document of Advance Care Planning for Chinese Adolescents and Young Adults: Voicing My CHOiCES

• Published in: Xiehe Yixue Zazhi Vol. 13; no. 1; pp. 96 - 103
• Main Authors: CAI Siyu, GUO Qiaohong, NING Xiaohong, LU Guijun, GUO Yanru, LIU Yin, QIN Xinyan, WANG Xianjing, YAN Tianyi, WANG Ruixin, ZHOU Xuan, PENG Xiaoxia, Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association
• Format: Journal Article
• Language: Chinese
• Published: Editorial Office of Medical Journal of Peking Union Medical College Hospital 01.01.2022
• Subjects: adolescent; advance care planning; cross-cultural adaptation; voicing my choices; young adult
• ISSN: 1674-9081
• DOI: 10.12290/xhyxzz.2021-0162

Objective  To describe the cross-cultural adaptation of the document of advance care planning (ACP) Voicing My CHOiCESTM in Chinese, and provide the basis for the practice of ACP in China.  Methods  The process of cross-cultural adaptation involved document translation and synthesis, evaluation of healthcare providers, evaluation of patients, back translation, author revision of the original document, and finalization. The participants were all kinds of healthcare providers involved in ACP practice, including doctors, nurses, social workers, psychologists, hospice volunteers, anesthesiologists, nutritionists, and pharmacists. The heathcare providers were invited to answer a questionnaire about the document's structure, importance, appropriateness, and level of language localization. The evaluation of healthcare providers included three rounds of the process. We revised the document based on the feedback and developed the first draft. The first draft of the document was reviewed by young patients with fatal di