An Environmental Scan and Appraisal of Patient Online Resources for Managing Rheumatoid Arthritis Flares

• Published in: Journal of rheumatology
• Main Authors: Subdar, Shakeel, Hoens, Alison M, White, Krista, Hartfeld, Nicole M S, Dhiman, Kiran, Duffey, Keeva, Heath, Claire E, Lamoureux, Gisele, Graveline, Christine, Davidson, Eileen, Hazlewood, Glen, Lacaille, Diane, Lopatina, Elena, Barber, Megan R W, Then, Karen L, Crump, Trafford, Zafar, Saania, Manske, Sarah L, Charlton, Alexandra, Osinski, Kelly, Fifi-Mah, Aurore, Mosher, Dianne, Barber, Claire E H
• Format: Journal Article
• Language: English
• Published: Canada 01.06.2024
• ISSN: 1499-2752
• DOI: 10.3899/jrheum.2023-1025

To conduct an environmental scan and appraisal of online patient resources to support rheumatoid arthritis (RA) flare self-management. We used the Google search engine (last search March 2023) using the terms "rheumatoid arthritis" and "flare management." Additional searches targeted major arthritis organizations, as well as regional, national, and international resources. Appraisal of the resources was conducted by 2 research team members and 1 patient partner to assess the understandability and actionability of the resource using the Patient Education Materials Assessment Tool (PEMAT). Resources rating ≥ 60% in both domains by either the research team or the patient partner were further considered for content review. During content review, resources were excluded if they contained product advertisements, inaccurate information, or use of noninclusive language. If content review criteria were met, resources were designated as "highly recommended" if both patient partners and researchers' PEMAT ratings were ≥ 60%. If PEMAT ratings were divergent and had a rating ≥ 60% from only 1 group of reviewers, the resource was designated "acceptable." We identified 44 resources; 12 were excluded as they did not pass the PEMAT assessment. Fourteen resources received ratings ≥ 60% on understandability and actionability from both researchers and patient partners; 10 of these were retained following content review as "highly recommended" flare resources. Of the 18 divergent PEMAT ratings, 8 resources were retained as "acceptable" following content review. There is high variability in the actionability and understandability of online RA flare materials; only 23% of resources were highly recommended by researchers and patient partners.