Patient researchers — the missing link?

Patients’ contributions to biomedical research have quickly been shifting from passive participant to active contributor. But what happens when the person with lived experience of the disease becomes the clinical researcher?

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Bibliographic Details
Published inNature medicine Vol. 26; no. 10; p. 1507
Main Author Riggare, Sara
Format Journal Article
LanguageEnglish
Published New York Nature Publishing Group US 01.10.2020
Nature Publishing Group
Subjects
692/308/575
692/700/1538
706/648/453
Adult
Biomedical and Life Sciences
Biomedical Research - standards
Biomedicine
Cancer Research
Care and treatment
Female
Health Knowledge, Attitudes, Practice
Health Literacy - standards
Humans
Infectious Diseases
Laboratory Personnel - trends
Medical research
Medicin och hälsovetenskap
Medicine, Experimental
Metabolic Diseases
Methods
Molecular Medicine
Neurosciences
Parkinson Disease - etiology
Parkinson Disease - therapy
Patient Advocacy
Patient Participation
Patients
Personal Satisfaction
Power, Psychological
Professional-Patient Relations
Public participation
Self Care
Self Efficacy
Social aspects
World View
Sweden
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Summary:Patients’ contributions to biomedical research have quickly been shifting from passive participant to active contributor. But what happens when the person with lived experience of the disease becomes the clinical researcher?
Bibliography:ObjectType-Article-2
SourceType-Scholarly Journals-1
ObjectType-Memoir/Personal Document-1
ObjectType-Feature-3
content type line 23
ISSN:1078-8956
1546-170X
1546-170X
DOI:10.1038/s41591-020-1080-4