Autism-Specific Primary Care Medical Home Intervention

• Published in: Journal of autism and developmental disorders Vol. 42; no. 6; pp. 1087 - 1093
• Main Authors: Golnik, Allison, Scal, Peter, Wey, Andrew, Gaillard, Philippe
• Format: Journal Article
• Language: English
• Published: Boston Springer US 01.06.2012; Springer; Springer Nature B.V
• Subjects: Adolescent; Autism; Autism Spectrum Disorders; Autistic Disorder - therapy; Autistic spectrum disorders; Behavioral Science and Psychology; Biological and medical sciences; Child; Child and School Psychology; Child clinical studies; Child Health; Child Health Services; Clinical Diagnosis; Collaborative decision making; Control Groups; Coordination; Coping; Decision Making; Departments; Developmental disorders; Disabled Children; Family Environment; Family Involvement; Family medicine; Family stress; Female; Health care; Health Care Surveys; Health Needs; Health Services Needs and Demand; Humans; Hyperactivity; Infantile autism; Intervention; Male; Medical sciences; Medical Services; National Surveys; Neurodevelopmental disorders; Neurosciences; Original Paper; Parents; Patient Satisfaction; Patient-Centered Care - methods; Patients; Pediatrics; Pervasive Developmental Disorders; Physical Disabilities; Physicians; Pilot Projects; Primary Health Care; Primary Health Care - methods; Psychology; Psychology. Psychoanalysis. Psychiatry; Psychopathology. Psychiatry; Public Health; Quality of Life; Resistance (Psychology); Social Support Groups; State Surveys; Stress; Stress Variables; Surveys; Total Quality Management; Unmet needs; Minnesota; Autism; Medical home; Primary care; Care coordination; Primary health care; Developmental disorder; Public health
• ISSN: 0162-3257; 1573-3432; 1573-3432
• DOI: 10.1007/s10803-011-1351-5

Forty-six subjects received primary medical care within an autism-specific medical home intervention ( www.autismmedicalhome.com ) and 157 controls received standard primary medical care. Subjects and controls had autism spectrum disorder diagnoses. Thirty-four subjects (74%) and 62 controls (40%) completed pre and post surveys. Controlling for pre-survey medical home status, subjects had 250% greater odds of receipt of a medical home at the study end compared to controls ( p  = 0.021). Compared to controls, subjects receiving the intervention reported significantly more satisfaction ( p  = 0.0004), greater shared decision making ( p  = 0.0005) and fewer unmet needs ( p  = 0.067). However, subjects reported no change in family stress ( p  = 0.204).