Assessment of caregivers' strain during radiation therapy of head-and-neck cancer patients: An institutional report using modified caregivers' strain index scale

• Published in: Indian journal of palliative care Vol. 25; no. 2; pp. 228 - 231
• Main Authors: Manir, Kazi, Ghosh, Sourav
• Format: Journal Article
• Language: English
• Published: United States Wolters Kluwer India Pvt. Ltd 01.04.2019; Medknow Publications and Media Pvt. Ltd; Scientific Scholar; Wolters Kluwer - Medknow
• Subjects: Age; Cancer patients; Cancer therapies; Care and treatment; Caregivers; Consent; Diagnosis; Head & neck cancer; Head and neck cancer; Health aspects; Oncology; Original; Patients; Psychological aspects; Public transportation; Questionnaires; Radiation (Physics); Radiation therapy; Radiotherapy; Rural areas; Social aspects; Socioeconomic factors; Stress (Psychology); India; Southeast Asia; strain; head-and-neck cancer; Caregiver
• ISSN: 0973-1075; 1998-3735
• DOI: 10.4103/IJPC.IJPC_159_18

Aims: Very little works have been reported on the issues of burden perceived by the caregivers of head-and-neck cancer (HNC) patients. Job of the caregiver is complex, and it limits their social, psychological, and economical well-being. Our study aims at assessing caregivers' strain during radiation therapy (RT) of HNC patients using the Modified Caregivers' Strain Index (MCSI) Scale. Materials and Methods: In this single-institutional cross-sectional study, we interviewed caregivers of HNC patients undergoing curative RT. Along with MCSI, a 13-point questionnaire, which was self-administered in local languages; we collected baseline data of patients and their caregivers. Scores were evaluated. For each question, score varies 0-2. Higher the Median Hazard Score (H Score), more was the level of the strain. Results: We interviewed 24 participants. Response rate was 100%. About 45.8% of patients were in Stage III. The median age of caregivers was 40 years; 58.3% were male, 79.2% were employed, and 58.3% were belonging to the upper-lower class. Nearly 66.6% were spouse of the patients and 70.8% belong to joint family. In MCSI score analysis, H Score was 22 (range 14) with a minimum score of 14 and maximum score of 26. The most common score was 20. About 65.1% of participants responded Score 2 in all aspects of strain indices. Travel time had a significant positive association with total H Scores (Pearson's r = 0.663, P < 0.05). Conclusion: Majority of the caregivers was suffering from severe physical, personal, emotional, and social/financial strain. This issue must be addressed in holistic cancer care.