An online self-care education program to support patients after total laryngectomy: feasibility and satisfaction

• Published in: Supportive care in cancer Vol. 24; no. 3; pp. 1261 - 1268
• Main Authors: Cnossen, Ingrid C., van Uden-Kraan, Cornelia F., Eerenstein, Simone E. J., Jansen, Femke, Witte, Birgit I., Lacko, Martin, Hardillo, José A., Honings, Jimmie, Halmos, Gyorgy B., Goedhart-Schwandt, Noortje L. Q., de Bree, Remco, Leemans, C. René, Leeuw, Irma M. Verdonck-de
• Format: Journal Article
• Language: English
• Published: Berlin/Heidelberg Springer Berlin Heidelberg 01.03.2016; Springer; Springer Nature B.V
• Subjects: Adult; Aged; Cross-Sectional Studies; Education; Employment; Female; Health Literacy - methods; Humans; Internet; Laryngeal cancer; Laryngeal Neoplasms - surgery; Laryngectomy - rehabilitation; Male; Medicine; Medicine & Public Health; Middle Aged; Nursing; Nursing Research; Oncology; Original; Original Article; Pain Medicine; Patient Education as Topic - methods; Patient Satisfaction - statistics & numerical data; Quality of Life; Rehabilitation Medicine; Self care (Health); Self Care - methods; Self help; Surveys; Surveys and Questionnaires; Laryngeal cancer; Total laryngectomy; Self-care; eHealth
• ISSN: 0941-4355; 1433-7339
• DOI: 10.1007/s00520-015-2896-1

Purpose The purpose of this study was to investigate the feasibility of an online self-care education program supporting early rehabilitation of patients after total laryngectomy (TLPs) and factors associated with satisfaction. Methods Health care professionals (HCPs) were invited to participate and to recruit TLPs. TLPs were informed on the self-care education program “In Tune without Cords” (ITwC) after which they gained access. A study specific survey was used (at baseline T0 and postintervention T1) on TLPs’ uptake. Usage, satisfaction (general impression, willingness to use, user-friendliness, satisfaction with self-care advice and strategies, Net Promoter Score (NPS)), sociodemographic, and clinical factors were analyzed. Results HCPs of 6 out of 9 centers (67 % uptake rate) agreed to participate and recruited TLPs. In total, 55 of 75 TLPs returned informed consent and the baseline T0 survey and were provided access to ITwC (73 % uptake rate). Thirty-eight of these 55 TLPs used ITwC and completed the T1 survey (69 % usage rate). Most (66 %) TLPs were satisfied (i.e., score ≥7 (scale 1–10) on 4 survey items) with the self-care education program (mean score 7.2, SD 1.1). NPS was positive (+5). Satisfaction with the self-care education program was significantly associated with (higher) educational level and health literacy skills ( P =  .004, P  = .038, respectively). No significant association was found with gender, age, marital status, employment status, Internet use, Internet literacy, treatment modality, time since total laryngectomy, and quality of life. Conclusion The online self-care education program ITwC supporting early rehabilitation was feasible in clinical practice. In general, TLPs were satisfied with the program.