Translating research into practice-implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat

• Published in: Pediatric rheumatology online journal Vol. 20; no. 1; p. 10
• Main Authors: Yildirim-Toruner, Cagri, Pooni, Rajdeep, Goh, Y Ingrid, Becker-Haimes, Emily, Dearing, James W, Fernandez, Maria E, Morgan, Esi M, Parry, Gareth, Burnham, Jon M, Ardoin, Stacy P, Barbar-Smiley, Fatima, Chang, Joyce C, Chiraseveenuprapund, Peter, Del Gaizo, Vincent, Eakin, Guy, Johnson, Lisa C, Kimura, Yukiko, Knight, Andrea M, Kohlheim, Melanie, Lawson, Erica F, Lo, Mindy S, Pan, Nancy, Ring, Andrea, Ronis, Tova, Sadun, Rebecca E, Smitherman, Emily A, Taxter, Alysha J, Taylor, Janalee, Vehe, Richard K, Vora, Sheetal S, Weiss, Jennifer E, von Scheven, Emily
• Format: Journal Article Conference Proceeding
• Language: English
• Published: England BioMed Central Ltd 07.02.2022; BioMed Central; BMC
• Subjects: Arthritis; Arthritis, Juvenile; Biomedical Research; Collaboration; Design; Dissemination; Evidence-based medicine; Evidence-based practice; Framework; Humans; Implementation; Implementation Science; Implementation sciences; Knowledge translation; Medical research; Medicine, Experimental; Pediatrics; Review; Rheumatic diseases; Rheumatology; Science; Strategy; Translational Research, Biomedical; United States > US; Texas; Dissemination; Implementation sciences; Strategy; Pediatric rheumatology; Knowledge translation; Framework; Implementation
• ISSN: 1546-0096; 1546-0096
• DOI: 10.1186/s12969-022-00665-y

The translation of research findings into clinical practice is challenging, especially fields like in pediatric rheumatology, where the evidence base is limited, there are few clinical trials, and the conditions are rare and heterogeneous. Implementation science methodologies have been shown to reduce the research- to- practice gap in other clinical settings may have similar utility in pediatric rheumatology. This paper describes the key discussion points from the inaugural Childhood Arthritis and Rheumatology Research Alliance Implementation Science retreat held in February 2020. The aim of this report is to synthesize those findings into an Implementation Science Roadmap for pediatric rheumatology research. This roadmap is based on three foundational principles: fostering curiosity and ensuring discovery, integration of research and quality improvement, and patient-centeredness. We include six key steps anchored in the principles of implementation science. Applying this roadmap will enable researchers to evaluate the full range of research activities, from the initial clinical design and evidence acquisition to the application of those findings in pediatric rheumatology clinics and direct patient care.