“Maybe if I stop the drugs, then maybe they’d care?”—hospital care experiences of people who use drugs

• Published in: Harm reduction journal Vol. 16; no. 1; pp. 16 - 10
• Main Authors: Chan Carusone, Soo, Guta, Adrian, Robinson, Samantha, Tan, Darrell H., Cooper, Curtis, O’Leary, Bill, de Prinse, Karen, Cobb, Grant, Upshur, Ross, Strike, Carol
• Format: Journal Article
• Language: English
• Published: England BioMed Central Ltd 13.02.2019; BioMed Central; BMC
• Subjects: Acquired immune deficiency syndrome; Adult; Adults; AIDS; Audio data; Beliefs, opinions and attitudes; Care and treatment; Delivery of Health Care; Domains; Drug abuse; Drug abusers; Drug use; Drug Users - psychology; Drugs; Emergency medical care; Female; Harm reduction; Health care; Hepatitis; Hepatitis C; Hepatitis C - complications; HIV; HIV Infections - complications; Hospital care; Hospital patients; Hospitals; Human immunodeficiency virus; Humans; Male; Management; Marginalized groups; Medical care quality; Medical research; Mental health care; Middle Aged; Morbidity; Mortality; Narcotics; Pain; Pain Management; Patient Acceptance of Health Care; Patient Admission; Patient Advocacy; Patient experience; Patient outcomes; Patients; Public health; Qualitative research; Quality control; Quality of Health Care; Social aspects; Social Stigma; Socioeconomic Factors; Stigma; Substance abuse treatment; Substance Abuse, Intravenous; Canada; Qualitative research; Stigma; Hospital care; Patient experience; Drug use
• ISSN: 1477-7517; 1477-7517
• DOI: 10.1186/s12954-019-0285-7

Drug use is associated with increased morbidity and mortality but people who use drugs experience significant barriers to care. Data are needed about the care experiences of people who use drugs to inform interventions and quality improvement initiatives. The objective of this study is to describe and characterize the experience of acute care for people who use drugs. We conducted a qualitative descriptive study. We recruited people with a history of active drug use at the time of an admission to an acute care hospital, who were living with HIV or hepatitis C, in Toronto and Ottawa, Canada. Data were collected in 2014 and 2015 through semi-structured interviews, audio-recorded and transcribed, and analyzed thematically. Twenty-four adults (18 men, 6 women) participated. Participants predominantly recounted experiences of stigma and challenges accessing care. We present the identified themes in two overarching domains of interest: perceived effect of drug use on hospital care and impact of care experiences on future healthcare interactions. Participants described significant barriers to pain management, often resulting in inconsistent and inadequate pain management. They described various strategies to navigate access and receipt of healthcare from being "an easy patient" to self-advocacy. Negative experiences influenced their willingness to seek care, often resulting in delayed care seeking and targeting of certain hospitals. Drug use was experienced as a barrier at all stages of hospital care. Interventions to decrease stigma and improve our consistency and approach to pain management are necessary to improve the quality of care and care experiences of those who use drugs.