Exploring views on medical care for people with intellectual disabilities: an international concept mapping study

Medical care for people with intellectual and developmental disabilities (IDD) is organized differently across the globe and interpretation of the concept of medical care for people with IDD may vary across countries. Existing models of medical care are not tailored to the specific medical care need...

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Published inInternational journal for equity in health Vol. 21; no. 1; pp. 1 - 99
Main Authors Breuer, Marian E. J, Bakker-van Gijssel, Esther J, Vlot-van Anrooij, Kristel, Tobi, Hilde, Leusink, Geraline L, Naaldenberg, Jenneken
Format Journal Article
LanguageEnglish
Published London BioMed Central Ltd 19.07.2022
BioMed Central
BMC
Subjects
Brainstorming
Care and treatment
Cluster analysis
Concept mapping
Context
Data collection
delivery of health care
Demographic aspects
Developmental disabilities
Diagnosis
Disabilities
Health care
Health care disparities
Health services
health services for persons with disabilities
Integrated
Intellectual disabilities
Mapping
Medical care
Medical research
Mental retardation
Patients
persons with intellectual disabilities
Quality management
Risk factors
Social aspects
Software
Netherlands
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Summary:Medical care for people with intellectual and developmental disabilities (IDD) is organized differently across the globe and interpretation of the concept of medical care for people with IDD may vary across countries. Existing models of medical care are not tailored to the specific medical care needs of people with IDD. This study aims to provide an improved understanding of which aspects constitute medical care for people with IDD by exploring how international researchers and practitioners describe this care, using concept mapping. Twenty-five experts (researchers and practitioners) on medical care for people with IDD from 17 countries submitted statements on medical care in their country in a brainstorming session, using an online concept mapping tool. Next, they sorted all collected statements and rated them on importance. The themes, clusters and statements identified through this explorative study provide additional content and context for the specific patient group of people with IDD to the dimensions of previous models of medical care.
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ISSN:1475-9276
1475-9276
DOI:10.1186/s12939-022-01700-w