Experiences of caregiving with Alzheimer's disease in the LGBT community

The goal of this paper is to develop a more thorough understanding of the experiences of LGBT older adults living with dementia and their caregivers. A phenomenological approach using in-depth interviews with current or former caregivers of LGBT persons living with Alzheimer's disease (AD) was...

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Published inBMC geriatrics Vol. 23; no. 1; p. 293
Main Authors Candrian, Carey, Burke, Emily S, Kline, Danielle, Torke, Alexia M
Format Journal Article
LanguageEnglish
Published England BioMed Central Ltd 15.05.2023
BioMed Central
BMC
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Summary:The goal of this paper is to develop a more thorough understanding of the experiences of LGBT older adults living with dementia and their caregivers. A phenomenological approach using in-depth interviews with current or former caregivers of LGBT persons living with Alzheimer's disease (AD) was conducted. Participants ranged in age from 44-77 years old; 74% were lesbian, 16% gay, 5% straight, and 5% unknown. Five themes were identified from the analysis: Caregiver tension and isolation; financial stress & security; lack of social support & connection; engineering grief support, and entrapment of past and present stigma and discrimination. Discrimination related to LGBT status was an important theme over the participants' lives and occurred for several during dementia care. While other themes were similar to prior AD studies, LGBT status affected these other aspects of the caregiving experience. Findings can inform future programs that better meet needs of LGBT people and those who care for them.
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content type line 23
ISSN:1471-2318
1471-2318
DOI:10.1186/s12877-023-03914-1