Stress, coping, and lived experiences among caregivers of cancer patients on palliative care: A mixed method research

• Published in: Indian journal of palliative care Vol. 24; no. 3; pp. 313 - 319
• Main Authors: Antony, Lovely, George, Linu, Jose, Tessy
• Format: Journal Article
• Language: English
• Published: United States Wolters Kluwer India Pvt. Ltd 01.07.2018; Medknow Publications and Media Pvt. Ltd; Scientific Scholar; Medknow Publications & Media Pvt Ltd
• Subjects: Activities of daily living; Cancer; Cancer patients; Care and treatment; Caregivers; Coping; Coping (Psychology); Health aspects; Hospice care; Interviews; Likert scale; Methods; Mixed methods research; Nursing; Original; Palliative care; Patients; Psychiatric-mental health nursing; Psychological aspects; Qualitative research; Quality of life; Sampling techniques; Social aspects; Spirituality; Stress; Stress management; stress; Caregivers of cancer patients; palliative care; mixed method; coping
• ISSN: 0973-1075; 1998-3735
• DOI: 10.4103/IJPC.IJPC_178_17

Aim: The aim of this study is to assess stress and coping among caregivers of cancer patients on palliative care and to acquire a deeper understanding of their lived experiences. Materials and Methods: A mixed method study was conducted among caregivers of cancer patients on palliative care using mixed method approach and triangulation design. Data were gathered using self-administered stress rating scale, brief COPE inventory, and structured interview schedule. Nested sampling technique was adopted. The sample size for quantitative approach was eighty and qualitative approach was eight. Results: The results showed that 74% of the participants were females and 30% of them belong to the age group between 51 and 60 years. Fifty-four percent of them belong to Hindu religion and 40% were unemployed. Sixty-two percent of the patients were dependent on caregivers for all activities of daily living. Assessment of stress revealed that 82% of the participants had moderate stress and 18% had severe stress. Participants adopted both negative and positive coping. There was a significant negative correlation (r = −0.722, P = 0.001) between stress and coping. Similar findings were also observed in the phenomenological approach. The theme evolved was "caring companionship to palliative care." Conclusion: Palliative caregiving is stressfull, challenging and can impact the caregiver's physical, emotional, psychological, and social well-being. Understanding lived experiences of caregivers of cancer patients on palliative care is important for the health professionals to improve the support, guidance, and education given to the caregivers of cancer patients on palliative care.