A Systematic Review of Barriers and Facilitators to Minority Research Participation Among African Americans, Latinos, Asian Americans, and Pacific Islanders

To assess the experienced or perceived barriers and facilitators to health research participation for major US racial/ethnic minority populations, we conducted a systematic review of qualitative and quantitative studies from a search on PubMed and Web of Science from January 2000 to December 2011. W...

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Bibliographic Details
Published inAmerican journal of public health (1971) Vol. 104; no. 2; pp. e16 - e31
Main Authors George, Sheba, Duran, Nelida, Norris, Keith
Format Journal Article
LanguageEnglish
Published United States American Public Health Association 01.02.2014
Subjects
African Americans
Age Factors
Altruism
Clinical trials
Community Health
Community-Based Participatory Research - organization & administration
Consent
Cooperative Behavior
Cultural Characteristics
Cultural Competency
Ethics
Ethnicity
Ethnicity - psychology
Health Services Accessibility
Humans
Medical research
Minority & ethnic groups
Multiculturalism & pluralism
Online Systematic Reviews
Other Race/Ethnicity
Participation
Patient Selection
Public health
Public Health Practice
Quantitative research
Racial Groups - psychology
Racism
Racism - psychology
Research Design
Research Subjects - psychology
Sex Factors
Social Science
Social Stigma
Social Support
Socioeconomic Factors
Studies
Systematic review
Trust
United States > US
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Summary:To assess the experienced or perceived barriers and facilitators to health research participation for major US racial/ethnic minority populations, we conducted a systematic review of qualitative and quantitative studies from a search on PubMed and Web of Science from January 2000 to December 2011. With 44 articles included in the review, we found distinct and shared barriers and facilitators. Despite different expressions of mistrust, all groups represented in these studies were willing to participate for altruistic reasons embedded in cultural and community priorities. Greater comparative understanding of barriers and facilitators to racial/ethnic minorities’ research participation can improve population-specific recruitment and retention strategies and could better inform future large-scale prospective quantitative and in-depth ethnographic studies.
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S. George originated the project, led the writing, and, along with N. Duran, reviewed studies, developed the coding scheme, and conducted the analysis. N. Duran developed and managed the database used to summarize the data, retrieved and coded the relevant articles, conducted the analyses, and cowrote the article. K. Norris co-originated the project and cowrote the article.
Peer Reviewed
Contributors
ISSN:0090-0036
1541-0048
1541-0048
DOI:10.2105/AJPH.2013.301706