Nurses’ perceptions of barriers and supportive behaviors in end-of-life care in the intensive care unit: a cross-sectional study

• Published in: BMC palliative care Vol. 21; no. 1; pp. 1 - 130
• Main Authors: Xu, Dan-dan, Luo, Dan, Chen, Jie, Zeng, Ji-li, Cheng, Xiao-lin, Li, Jin, Pei, Juan-juan, Hu, Fen
• Format: Journal Article
• Language: English
• Published: London BioMed Central Ltd 19.07.2022; BioMed Central; BMC
• Subjects: Barriers; Behavior; Cross-sectional studies; Culture; Data collection; Death & dying; End-of-life care; Families & family life; Health care industry; Health care policy; Health services; Hospice care; Hospitals; Intensive care; Intensive care unit; Medical research; Mortality; Multidisciplinary teams; Nurses; Palliative care; Patients; Perceptions; Physicians; Polls & surveys; Questionnaires; Social workers; Sociocultural factors; Supportive behaviors; China; Hong Kong China
• ISSN: 1472-684X; 1472-684X
• DOI: 10.1186/s12904-022-01020-4

Abstract Background and aim Patient deaths are common in the intensive care unit, and a nurse’s perception of barriers to and supportive behaviors in end-of-life care varies widely depending upon their cultural background. The aim of this study was to describe the perceptions of intensive care nurses regarding barriers to and supportive behaviors in providing end-of-life care in a Chinese cultural context. Methods A cross-sectional survey was conducted among intensive care nurses in 20 intensive care units in 11 general hospitals in central and eastern China. Instruments used in this study were general survey and Beckstrand’s questionnaire. Data were collected via online survey platform. Descriptive analysis was used to describe general characteristics of participants and mean and standard deviations of the barriers and supportive behaviors. The mean and standard deviation were used to describe the intensity and frequency of each barrier or supportive behavior following Beckstrand’s method to calculate the score of barriers and supportive behaviors. Content analysis was used to analyze the responses to open-ended questions. Results The response rate was 53% ( n = 368/700). Five of the top six barriers related to families and the other was the nurse’s lack of time. Supportive behaviors included three related to families and three related to healthcare providers. Nurses in the intensive care unit felt that families should be present at the bedside of a dying patient, there is a need to provide a quiet, independent environment and psychological support should be provided to the patient and family. Nurses believe that if possible, families can be given flexibility to visit dying patients, such as increasing the number of visits, rather than limiting visiting hours altogether. Families need to be given enough time to perform the final rites on the dying patient. Moreover, it is remarkable that nurses’ supportive behaviors almost all concern care after death. Conclusions According to ICU-nurses family-related factors, such as accompany of the dying patients and acceptence of patient’s imminent death, were found the major factors affecting the quality of end-of-life care. These findings identify the most prominent current barriers and supportive behaviors, which may provide a basis for addressing these issues in the future to improve the quality of end-of-life care.