Quality of Care Indicators for the Rehabilitation of Children With Traumatic Brain Injury

• Published in: Archives of physical medicine and rehabilitation Vol. 93; no. 3; pp. 381 - 385.e9
• Main Authors: Rivara, Frederick P., MD, MPH, Ennis, Stephanie K., MS, CCC-SLP, Mangione-Smith, Rita, MD, MPH, MacKenzie, Ellen J., PhD, Jaffe, Kenneth M., MD
• Format: Journal Article
• Language: English
• Published: New York, NY Elsevier Inc 01.03.2012; Elsevier
• Subjects: Behavior; Biological and medical sciences; Brain injuries; Brain Injuries - psychology; Brain Injuries - rehabilitation; Child; Communication; Delphi Technique; Diseases of the osteoarticular system; Family; Humans; Injuries of the nervous system and the skull. Diseases due to physical agents; Medical sciences; Miscellaneous; Mobility Limitation; Outcome and Process Assessment, Health Care - organization & administration; Patient-Centered Care - organization & administration; Pediatrics - organization & administration; Physical Medicine and Rehabilitation; Quality Indicators, Health Care; Quality of health care; Radiotherapy. Instrumental treatment. Physiotherapy. Reeducation. Rehabilitation, orthophony, crenotherapy. Diet therapy and various other treatments (general aspects); Rehabilitation; Traumas. Diseases due to physical agents; RAND/UCLA Appropriateness Method; ADLs; Commission on Accreditation of Rehabilitation Facilities; Quality of health care; activities of daily living; traumatic brain injury; TBI; Rehabilitation; CARF; Brain injuries; RAM; Human; Nervous system diseases; Indicator; Care; Cerebral disorder; Reeducation; Orthopedics; Quality; Central nervous system disease; Head trauma; Child
• ISSN: 0003-9993; 1532-821X
• DOI: 10.1016/j.apmr.2011.08.015

Abstract Rivara FP, Ennis SK, Mangione-Smith R, MacKenzie EJ, Jaffe KM, and the National Expert Panel for the Development of Pediatric Rehabilitation Quality Care Indicators. Quality of care indicators for the rehabilitation of children with traumatic brain injury. Objective To develop measurement tools for assessing compliance with identifiable processes of inpatient care for children with traumatic brain injury (TBI) that are reliable, valid, and amenable to implementation. Design Literature review and expert panel using the RAND/UCLA Appropriateness Method and a Delphi technique. Setting Not applicable. Participants Children with TBI. Interventions Not applicable. Main Outcome Measure Quality of care indicators. Results A total of 119 indicators were developed across the domains of general management; family-centered care; cognitive-communication, speech, language, and swallowing impairments; gross and fine motor skill impairments; neuropsychologic, social, and behavioral impairments; school reentry; and community integration. There was a high degree of agreement on these indicators as valid and feasible quality measures for children with TBI. Conclusions These indicators are an important step toward building a better base of evidence about the effectiveness and efficiency of the components of acute inpatient rehabilitation for pediatric patients with TBI.