Implementation and case-study results of potentially better practices for family-centered care: the family-centered care map

• Published in: Pediatrics (Evanston) Vol. 118 Suppl 2; p. S108
• Main Authors: Johnston, Anne M, Bullock, Candice E, Graham, Jean E, Reilly, Maureen C, Rocha, Colleen, Hoopes, Jr, Robert D, Van der Meid, Vanessa, Gutierrez, Susan, Abraham, Marie R
• Format: Journal Article
• Language: English
• Published: United States 01.11.2006
• Subjects: Consumer Behavior; Continuity of Patient Care - organization & administration; Continuity of Patient Care - standards; Focus Groups; Humans; Infant, Low Birth Weight; Infant, Newborn; Intensive Care Units, Neonatal - organization & administration; Intensive Care Units, Neonatal - standards; Intensive Care, Neonatal - methods; Intensive Care, Neonatal - standards; Length of Stay; Outcome and Process Assessment (Health Care); Patient Discharge; Patient Education as Topic; Professional-Family Relations; Quality Assurance, Health Care; United States; United States
• ISSN: 1098-4275
• DOI: 10.1542/peds.2006-0913G

The objective of this study was to enhance the ability to coordinate and deliver care in a holistic manner, through a family-centered care map, so that the developmental, physical, and psychosocial needs of the infant and family are met. A Web-based map was based on 7 distinct clinical phases with 3 variations of an infant's course through a NICU. Sixty-three potentially better practices were identified and 7 potentially better practices were implemented through case studies. Measures of family satisfaction revealed improvements in delivery of family-centered care. Increases in discharge growth parameters for extremely low birth weight infants were demonstrated. Length of stay for very low birth weight infants decreased from 73 to 60 days in Vermont. The collaborative process enhances identification of potentially better practices and results in both qualitative and quantitative improvements in family-centered care.