Effects of Supporting Community-Living Demented Patients and Their Caregivers: A Randomized Trial

• Published in: Journal of the American Geriatrics Society (JAGS) Vol. 49; no. 10; pp. 1282 - 1287
• Main Authors: Eloniemi-Sulkava, Ulla, Notkola, Irma-Leena, Hentinen, Maija, Kivelä, Sirkka-Liisa, Sivenius, Juhani, Sulkava, Raimo
• Format: Journal Article
• Language: English
• Published: Boston, MA, USA Blackwell Science Inc 01.10.2001; Blackwell; Wiley Subscription Services, Inc
• Subjects: Aged; Aged, 80 and over; Biological and medical sciences; Caregivers - psychology; Chi-Square Distribution; community care; Counseling; Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases; Dementia; Dementia - nursing; Elder care; Female; Finland; Follow-Up Studies; Home Nursing - organization & administration; Humans; Intervention; Long-Term Care - statistics & numerical data; Male; Medical sciences; Miscellaneous; Neurology; older; Older people; Prevention and actions; Proportional Hazards Models; Public health. Hygiene; Public health. Hygiene-occupational medicine; Retirement communities; Time Factors; Europe; Finland; Human; Social environment; Nervous system diseases; Organization; Managed care; Caregiver; Cerebral disorder; Senile dementia; Quality of life; Randomization; Follow up study; Central nervous system disease; At home; Clinical trial; Degenerative disease; Elderly; Community; Nurse; Social support
• ISSN: 0002-8614; 1532-5415
• DOI: 10.1046/j.1532-5415.2001.49255.x

OBJECTIVES: To determine whether community care of demented patients can be prolonged by means of a 2‐year support program based on nurse case management. DESIGN: Randomized controlled intervention study with 2‐year follow‐up. SETTING: Demented patients entitled to payments from the Social Insurance Institution for community care, in five municipalities in eastern Finland. PARTICIPANTS: One hundred demented patients, age 65 and older, living at home with the primary support of informal caregivers, allocated at random to the intervention (n = 53) or control group (n = 47). INTERVENTION: Intervention patients and their caregivers were provided with a 2‐year intervention program of systematic, comprehensive support by a dementia family care coordinator. MEASUREMENTS: Time to institutionalization (period in community care) from enrollment of patients in the study to their placement in long‐term institutional care. RESULTS: During the first months, the rate of institutionalization was significantly lower in the intervention group than in the control group (P = .042), but the benefit of the intervention decreased with time (P = .028). Estimated probability of staying in community care up to 6, 12, and 24 months was 0.98, 0.92, and 0.63 in the intervention group and 0.91, 0.81, and 0.68 in the control group, respectively. Results also suggest that the intervention used in the study might be especially beneficial to patients with severe dementia and those with problems threatening the continuity of community care. CONCLUSIONS: The placement of demented patients in long‐term institutional care can be deferred with the support of a dementia family care coordinator. However, by the end of the 2‐year intervention, the number of patients institutionalized was similar in the intervention and control group. It seems to be beneficial to direct this type of intensive support at severely demented patients and their caregivers. On the basis of our experiences, we suggest that intervention by a dementia family care coordinator should be targeted especially at patients with problems threatening the continuity of community care. J Am Geriatr Soc 49:1282–1287, 2001.