Examining Primary Care Health Encounters for Adults With Autism Spectrum Disorder

Our objective was to identify perceived barriers and strategies to improve primary care encounters, as reported by adults with autism spectrum disorder (ASD), caregivers of adults with ASD, and primary care providers (PCPs) treating adults with ASD. As part of a larger mixed-methods design, adults w...

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Bibliographic Details
Published inThe American journal of occupational therapy Vol. 73; no. 5; p. 7305185030p1
Main Authors Stein Duker, Leah I, Sadie Kim, Hee Kyung, Pomponio, Amber, Mosqueda, Laura, Pfeiffer, Beth
Format Journal Article
LanguageEnglish
Published United States 01.09.2019
Subjects
Adult
Autism Spectrum Disorder - therapy
Caregivers
Communication
Female
Health Personnel
Humans
Male
Primary Health Care
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Summary:Our objective was to identify perceived barriers and strategies to improve primary care encounters, as reported by adults with autism spectrum disorder (ASD), caregivers of adults with ASD, and primary care providers (PCPs) treating adults with ASD. As part of a larger mixed-methods design, adults with ASD, caregivers, and PCPs (N = 78) in Los Angeles and Philadelphia completed surveys examining barriers to care and strategies to improve care. Multiple barriers to care were reported by adults with ASD and caregivers, including communication and sensory challenges. Adults with ASD and caregivers reported minimal use of strategies during primary care visits but indicated that those used were helpful during care. Expert PCPs reported using strategies more frequently than novice PCPs. All respondent groups endorsed that strategies had the potential to improve care in the future for adults with ASD. Opportunities exist for occupational therapy collaboration in primary health care and primary care education to improve care for adults with ASD.
ISSN:0272-9490
1943-7676
DOI:10.5014/ajot.2019.037226