2020 APHRS/HRS expert consensus statement on the investigation of decedents with sudden unexplained death and patients with sudden cardiac arrest, and of their families

• Published in: Journal of arrhythmia Vol. 37; no. 3; pp. 481 - 534
• Main Authors: Stiles, Martin K., Wilde, Arthur A. M., Abrams, Dominic J., Ackerman, Michael J., Albert, Christine M., Behr, Elijah R., Chugh, Sumeet S., Cornel, Martina C., Gardner, Karen, Ingles, Jodie, James, Cynthia A., Juang, Jyh‐Ming Jimmy, Kääb, Stefan, Kaufman, Elizabeth S., Krahn, Andrew D., Lubitz, Steven A., MacLeod, Heather, Morillo, Carlos A., Nademanee, Koonlawee, Probst, Vincent, Saarel, Elizabeth V., Sacilotto, Luciana, Semsarian, Christopher, Sheppard, Mary N., Shimizu, Wataru, Skinner, Jonathan R., Tfelt‐Hansen, Jacob, Wang, Dao Wu
• Format: Journal Article
• Language: English
• Published: Japan John Wiley & Sons, Inc 01.06.2021; John Wiley and Sons Inc; Wiley
• Subjects: Brugada syndrome; Cardiac arrest; cardiac genetics; Cardiac patients; catecholaminergic polymorphic ventricular tachycardia; defibrillator; expert consensus statement; genetic counseling; Guideline; guidelines; Health counseling; Heart beat; long QT syndrome; postmortem; resuscitation; sudden arrhythmic death syndrome; sudden cardiac death; sudden unexplained death; ventricular arrhythmia; ventricular arrhythmia; Brugada syndrome; long QT syndrome; sudden cardiac death; cardiac arrest; genetic counseling; catecholaminergic polymorphic ventricular tachycardia; postmortem; guidelines; resuscitation; sudden arrhythmic death syndrome; expert consensus statement; defibrillator; cardiac genetics; sudden unexplained death
• ISSN: 1880-4276; 1883-2148
• DOI: 10.1002/joa3.12449

This international multidisciplinary document intends to provide clinicians with evidence‐based practical patient‐centered recommendations for evaluating patients and decedents with (aborted) sudden cardiac arrest and their families. The document includes a framework for the investigation of the family allowing steps to be taken, should an inherited condition be found, to minimize further events in affected relatives. Integral to the process is counseling of the patients and families, not only because of the emotionally charged subject, but because finding (or not finding) the cause of the arrest may influence management of family members. The formation of multidisciplinary teams is essential to provide a complete service to the patients and their families, and the varied expertise of the writing committee was formulated to reflect this need. The document sections were divided up and drafted by the writing committee members according to their expertise. The recommendations represent the consensus opinion of the entire writing committee, graded by Class of Recommendation and Level of Evidence. The recommendations were opened for public comment and reviewed by the relevant scientific and clinical document committees of the Asia Pacific Heart Rhythm Society (APHRS) and the Heart Rhythm Society (HRS); the document underwent external review and endorsement by the partner and collaborating societies. While the recommendations are for optimal care, it is recognized that not all resources will be available to all clinicians. Nevertheless, this document articulates the evaluation that the clinician should aspire to provide for patients with sudden cardiac arrest, decedents with sudden unexplained death, and their families.