The use of digital storytelling of patients’ stories as an approach to translating knowledge: a scoping review

• Published in: Research involvement and engagement Vol. 7; no. 1; pp. 1 - 58
• Main Authors: Park, Elly, Forhan, Mary, Jones, C. Allyson
• Format: Journal Article
• Language: English
• Published: London BioMed Central Ltd 28.08.2021; BioMed Central; BMC
• Subjects: Audiences; Caregivers; Clinical decision making; Digital storytelling; Dissertations & theses; Grey literature; Health research; Information sharing; Knowledge; Knowledge translation tools; Medical care; Medical research; Narrative medicine; Narratives; Patients; Quality management; Shared decision-making; Storytelling
• ISSN: 2056-7529; 2056-7529
• DOI: 10.1186/s40900-021-00305-x

A growing interest has centered on digital storytelling in health research, described as a multi-media presentation of a story using technology. The use of digital storytelling in knowledge translation (KT) is emerging as technology advances in healthcare to address the challenging tasks of disseminating and transferring knowledge to key stakeholders. We conducted a scoping review of the literature available on the use of patient digital storytelling as a tool in KT interventions. We followed by Arksey and O'Malley (Int J Soc Res Methodol 8(1):19-32, 2005), and Levac et al. (Implement Sci 5(1):69, 2010) recommended steps for scoping reviews. Search strategies were conducted for electronic databases (Medline, CINAHL, Web of Science, ProQuest dissertations and theses global, Clinicaltrials.gov and Psychinfo). The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews (PRISMA-ScR) was used to report the review process. Of 4656 citations retrieved, 114 full texts were reviewed, and twenty-one articles included in the review. Included studies were from nine countries and focused on an array of physical and mental health conditions. A broad range of interpretations of digital storytelling and a variety of KT interventions were identified. Digital storytelling was predominately defined as a story in multi-media form, presented as a video, for selective or public viewing and used as educational material for healthcare professionals, patients and families. Using digital storytelling as a tool in KT interventions can contribute to shared decision-making in healthcare and increase awareness in patients' health related experiences. Concerns centered on the accuracy and reliability of some of the information available online and the impact of digital storytelling on knowledge action and implementation.