Caring for Adolescents and Young Adults (AYA) with Cancer: A Scoping Review into Caregiver Burdens and Needs

AYAs with cancer (aged 15 to 39 at primary diagnosis) form a specific group within oncology, and there is limited information on the impact on their informal caregivers. This scoping review aimed to gain insight into the burden on caregivers of AYAs with cancer and identify the unmet needs they migh...

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Published inCancers Vol. 15; no. 12; p. 3263
Main Authors Reuvers, Milou J P, Gedik, Asiye, Way, Kirsty M, Elbersen-van de Stadt, Sanne M, van der Graaf, Winette T A, Husson, Olga
Format Journal Article
LanguageEnglish
Published Switzerland MDPI AG 20.06.2023
MDPI
Subjects
Age
Cancer
Caregivers
Families & family life
Fertility
Health care
Infertility
Medical diagnosis
Parents & parenting
Patients
Quality of life
Review
Sleep disorders
Social interactions
Social networks
Teenagers
Young adults
Youth
Netherlands
informal caregivers
AYA cancer patients
caregiver burden
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Summary:AYAs with cancer (aged 15 to 39 at primary diagnosis) form a specific group within oncology, and there is limited information on the impact on their informal caregivers. This scoping review aimed to gain insight into the burden on caregivers of AYAs with cancer and identify the unmet needs they might have. Eligible articles focused on impacts in one of the domains of caregiver burden (physical, psychological, social, on schedule, financial) or unmet needs. In all domains of caregiver burden, impact was reported by caregivers. Caregiving leads to physical problems (such as sleep problems) and psychological symptoms (e.g., depression, anxiety, and negative emotions). Loneliness is reported, and little peer-support. Many different tasks and roles must be undertaken, which is perceived as challenging. In addition, there is a financial impact and there are unmet needs to be met. Several domains of the lives of caregivers of AYA cancer patients are negatively affected by the disease. Some of these are age-specific, and tailored to a particular group of caregivers (parents, partners, or friends). AYA cancer patients represent a wide age range, resulting in the engagement of many different caregivers. Future research will need to take this into account in order to adequately provide support.
Bibliography:ObjectType-Article-2
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ISSN:2072-6694
2072-6694
DOI:10.3390/cancers15123263