Connecting with patients and instilling realism in an era of emerging communication possibilities: A review on palliative care communication heading to telecare practice

• Published in: Patient education and counseling Vol. 93; no. 3; pp. 504 - 514
• Main Authors: van Gurp, Jelle, Hasselaar, Jeroen, van Leeuwen, Evert, Hoek, Patrick, Vissers, Kris, van Selm, Martine
• Format: Journal Article
• Language: English
• Published: Ireland Elsevier Ireland Ltd 01.12.2013
• Subjects: Communication; Communication style; Connection; Dying people; Ethics; Genre; Hope; Humanizing; Humans; Internal Medicine; Nursing; Palliative care; Palliative Care - methods; Patients - psychology; Professional-Family Relations; Professional-Patient Relations; Quality of Life; Realism; Telecare; Telemedicine; Truth Disclosure; Netherlands; Ethics; Humanizing; Telemedicine; Palliative care; Connection; Telecare; Genre; Truth disclosure; Hope; Communication
• ISSN: 0738-3991; 1873-5134
• DOI: 10.1016/j.pec.2013.07.002

Abstract Objective Appropriate palliative care communication is pivotal to optimizing the quality of life in dying patients and their families. This review aims at describing communication patterns in palliative care and discussing potential relations between communication patterns and upcoming telecare in the practice of palliative care. Methods This review builds on a systematic five-step qualitative analysis of the selected articles: 1. Development of a ‘descriptive table of studies reviewed’ based on the concept of genre, 2. Open coding of table content and first broad clustering of codes, 3. Intracluster categorization of inductive codes into substantive categories, 4. Constant inter- and intracluster comparison results in identification of genres, and 5. Labeling of genres. Results This review includes 71 articles. In the analysis, two communication genres in palliative care proved to be dominant: the conversation to connect , about creating and maintaining a professional–patient/family relationship, and the conversation to instill realism , about telling a clinical truth without diminishing hope. Conclusion The abovementioned two genres clarify a logical intertwinement between communicative purposes, the socio-ethical background underlying palliative care practice and elements of form. Practice implications Our study supports understanding of current communication in palliative care and anticipates future communicative actions in an era of new communication technologies.