Optimising Evidence-Based Psychological Treatment for the Mental Health Needs of Children with Epilepsy: Principles and Methods

• Published in: Clinical child and family psychology review Vol. 23; no. 2; pp. 284 - 295
• Main Authors: Shafran, Roz, Bennett, Sophie, Coughtrey, Anna, Welch, Alice, Walji, Fahreen, Cross, J. Helen, Heyman, Isobel, Sibelli, Alice, Smith, Jessica, Ross, Jamie, Dalrymple, Emma, Varadkar, Sophia, Moss-Morris, Rona
• Format: Journal Article
• Language: English
• Published: New York Springer US 01.06.2020; Springer Nature B.V
• Subjects: Behavioral Science and Psychology; Child & adolescent mental health; Child and School Psychology; Childhood Needs; Clinical medicine; Comorbidity; Epilepsy; Epilepsy - epidemiology; Evidence; Evidence-Based Practice; Focus Groups; Health Needs; Humans; Mental disorders; Mental Disorders - epidemiology; Mental Disorders - therapy; Mental health; Patient Education as Topic - methods; Patient Education as Topic - standards; Psychology; Psychotherapy - methods; Psychotherapy - standards; Social Sciences; Social Stigma; Depression; Anxiety; Behaviour; Epilepsy; Implementation science
• ISSN: 1096-4037; 1573-2827
• DOI: 10.1007/s10567-019-00310-3

There are potent evidence-based psychological treatments for youth with mental health needs, yet they are rarely implemented in clinical practice, especially for youth with mental health disorders in the context of chronic physical illness such as epilepsy. Implementation science, the study of the translation of research into practice, can promote the uptake of existing effective interventions in routine clinical practice and aid the sustainable integration of psychological treatments with routine health care. The aim of this report was to use four implementation science methods to develop a version of an existing effective psychological treatment for mental health disorders [the Modular Approach to Treatment of Children with Anxiety, Depression or Conduct Problems (MATCH-ADTC)] for use within paediatric epilepsy services: (a) literature search; (b) iterative focus groups underpinned by normalisation process theory; (c) Plan–Do–Study–Act methods; and (d) qualitative patient interviews. Findings: Three modifications were deemed necessary to facilitate implementation in children with both mental health disorders and epilepsy. These were (a) a universal brief psychoeducational component addressing the relationship between epilepsy and mental health; (b) supplementary, conditionally activated interventions addressing stigma, parental mental health and the transition to adulthood; and (c) additional training and supervision. The intervention needed relatively little alteration for implementation in paediatric epilepsy services. The modified treatment reflected the scientific literature and the views of clinicians and service users. The multi-method approach used in this report can serve as a model for implementation of evidence-based psychological treatments for children with mental health needs in the context of other chronic illnesses.