Curation of an intensive care research dataset from routinely collected patient data in an NHS trust. [version 1; peer review: 2 approved]

• Published in: F1000 research Vol. 8; p. 1460
• Main Authors: McWilliams, Chris, Inoue, Joshua, Wadey, Philip, Palmer, Graeme, Santos-Rodriguez, Raul, Bourdeaux, Christopher
• Format: Journal Article
• Language: English
• Published: England Faculty of 1000 Ltd 2019; F1000 Research Limited; F1000 Research Ltd
• Subjects: Critical care; Data collection; Data Note; Datasets; Electronic health records; Information sharing; Information systems; Intensive care; Intensive care units; Patients; Proprietary; Researchers; Software; United Kingdom > UK; medical database; Intensive care; research data; Philips; ICNARC; electronic health record; clinical information system; critical care data
• ISSN: 2046-1402; 2046-1402
• DOI: 10.12688/f1000research.20193.1

In this data note we provide the details of a research database of 4831 adult intensive care patients who were treated in the Bristol Royal Infirmary, UK between 2015 and 2019. The purposes of this publication are to describe the dataset for external researchers who may be interested in making use of it, and to detail the methods used to curate the dataset in order to help other intensive care units make secondary use of their routinely collected data. The curation involves linkage between two critical care datasets within our hospital and the accompanying code is available online. For reasons of data privacy the data cannot be shared without researchers obtaining appropriate ethical consents. In the future we hope to obtain a data sharing agreement in order to publicly share the de-identified data, and to link our data with other intensive care units who use a Philips clinical information system.