Development of a text messaging system to improve receipt of survivorship care in adolescent and young adult survivors of childhood cancer

• Published in: Journal of cancer survivorship Vol. 11; no. 4; pp. 505 - 516
• Main Authors: Casillas, Jacqueline, Goyal, Anju, Bryman, Jason, Alquaddoomi, Faisal, Ganz, Patricia A, Lidington, Emma, Macadangdang, Joshua, Estrin, Deborah
• Format: Journal Article
• Language: English
• Published: New York Springer US 01.08.2017; Springer Nature B.V
• Subjects: Acceptability; Adolescent; Adult; Cancer; Child; Children; Children & youth; Communications systems; Communities; Data processing; Feasibility studies; Feedback; Health Informatics; Health Promotion and Disease Prevention; Humans; Male; Medicine; Medicine & Public Health; Messages; Neoplasms - mortality; Neoplasms - therapy; Oncology; Primary Care Medicine; Public Health; Qualitative analysis; Quality of Life Research; Screening; Short message service; Social behavior; Social interactions; Social networks; Social organization; Survival; Survival Rate; Survivors - psychology; Teenagers; Text messaging; Text Messaging - utilization; Usability; Young Adult; Young adults; Adolescent and young adult; Text message; SMS; Late effects; Survivorship; Mobile device
• ISSN: 1932-2259; 1932-2267
• DOI: 10.1007/s11764-017-0609-0

Purpose This study aimed to develop and examine the acceptability, feasibility, and usability of a text messaging, or Short Message Service (SMS), system for improving the receipt of survivorship care for adolescent and young adult (AYA) survivors of childhood cancer. Methods Researchers developed and refined the text messaging system based on qualitative data from AYA survivors in an iterative three-stage process. In stage 1, a focus group ( n  = 4) addressed acceptability; in stage 2, key informant interviews ( n  = 10) following a 6-week trial addressed feasibility; and in stage 3, key informant interviews ( n  = 23) following a 6-week trial addressed usability. Qualitative data were analyzed using a constant comparative analytic approach exploring in-depth themes. Results The final system includes programmed reminders to schedule and attend late effect screening appointments, tailored suggestions for community resources for cancer survivors, and messages prompting participant feedback regarding the appointments and resources. Participants found the text messaging system an acceptable form of communication, the screening reminders and feedback prompts feasible for improving the receipt of survivorship care, and the tailored suggestions for community resources usable for connecting survivors to relevant services. Participants suggested supplementing survivorship care visits and forming AYA survivor social networks as future implementations for the text messaging system. Conclusions The text messaging system may assist AYA survivors by coordinating late effect screening appointments, facilitating a partnership with the survivorship care team, and connecting survivors with relevant community resources. Implications for Cancer Survivors The text messaging system has the potential to improve the receipt of survivorship care.