Informal caregiver motivations, values, challenges and gains: A photovoice and interpretative phenomenological analysis of interrelationships

The adoption of a caregiving role in the context of illness and disability is often taken for granted. This study explores caregivers’ motivations to provide care and how these relate to values, and to the challenges and gains of caregiving. Eight semi-structured interviews were conducted with careg...

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Bibliographic Details
Published inJournal of health psychology Vol. 28; no. 6; pp. 568 - 582
Main Authors Zarzycki, Mikołaj, Seddon, Diane, Morrison, Val
Format Journal Article
LanguageEnglish
Published London, England SAGE Publications 01.05.2023
SAGE PUBLICATIONS, INC
Subjects
Caregivers
Caregiving
Challenges
Disability
Elicitation
Extrinsic motivation
Humans
Interpretative phenomenological analysis
Life history
Motivation
Photography
Values
photovoice
interpretative phenomenological analysis (IPA)
motivations
values
caregiving gains
informal caregiving
caregiving challenges
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Summary:The adoption of a caregiving role in the context of illness and disability is often taken for granted. This study explores caregivers’ motivations to provide care and how these relate to values, and to the challenges and gains of caregiving. Eight semi-structured interviews were conducted with caregivers and photographs were taken by caregivers to exemplify their caregiving experiences. This photo-elicitation method complemented the use of Interpretative Phenomenological Analysis when applied to verbatim transcripts. Superordinate themes included: caregiver’s life story; significance of family; caregiving obligations; caring relationship; challenges and gains associated with caregiver motivations. Intrinsic and extrinsic motivations were less distinct in caregivers’ lived experiences than previously suggested, and were influenced by family values and specific challenges and gains of caregiving. The coexistence of different motivations and the nature of single complex motivations is discussed. The importance of caregiver assessment and support planning, and regular breaks from caregiving are highlighted.
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Mikołaj Zarzycki is now affiliated to Liverpool Hope University, Liverpool, UK
ISSN:1359-1053
1461-7277
DOI:10.1177/13591053221124647