Quality of life and emotional distress in patients and burden in caregivers: a comparison between assisted peritoneal dialysis and self-care peritoneal dialysis

• Published in: Quality of life research Vol. 25; no. 2; pp. 373 - 384
• Main Authors: Griva, K., Goh, C. S., Rang, W. C. A., Yu, Z. L., Chan, M. C., Wu, S. Y., Krishnasamy, T., Foo, M.
• Format: Journal Article
• Language: English
• Published: Cham Springer 01.02.2016; Springer International Publishing; Springer Nature B.V
• Subjects: Activities of daily living; Adaptation, Psychological; Adult; Aged; Anxiety; Anxiety - psychology; Automation; Caregivers; Caregivers - psychology; CLINICAL AND POLICY APPLICATIONS; Clinical outcomes; Comorbidity; Continuous ambulatory peritoneal dialysis; Cross-Sectional Studies; Depression - psychology; Depressive disorders; Dialysis; Emotional distress; Emotions; Family members; Female; Health outcomes; Hemodialysis; Hospitals; Humans; Kidney diseases; Male; Medicine; Medicine & Public Health; Middle Aged; Older people; Patients; Peritoneal dialysis; Peritoneal Dialysis, Continuous Ambulatory - psychology; Psychiatric Status Rating Scales; Public Health; Quality of life; Quality of Life - psychology; Quality of Life Research; Questionnaires; Self Care; Sociology; Stress, Psychological - psychology; Surveys and Questionnaires; Self-care peritoneal dialysis; Assisted peritoneal dialysis; Burden; Caregiver; Quality of life
• ISSN: 0962-9343; 1573-2649
• DOI: 10.1007/s11136-015-1074-8

Purpose Assisted peritoneal dialysis (PD) involving caregivers allows more patients to get started on homebased dialysis with good clinical outcomes, but evidence on patient-reported and caregiver-reported outcomes is lacking. This study aimed to compare assisted PD versus self-care PD on quality of life (QoL) and psychosocial outcomes for patients and caregivers. The effect of PD modality [automated PD (APD); continuous ambulatory PD (CAPD)] in relation to self-care or assisted care was also examined. Methods A cross-sectional sample of 231 PD patients [142 self-care (57 APD/85 CAPD) and 89 assisted care PD (45 APD/44 CAPD)], 72 caregivers of assisted PD patients and 39 family members of self-care PD patients completed the Kidney Disease Quality of Life Short Form (KDQOLSF), World Health Organisation Quality of Life Instrument-brief and the Hospital Anxiety and Depression Scale. Caregivers and family members completed the Lay CareGiving for Adults Receiving Dialysis questionnaire and Zarit Burden Interview. Results Case-mix-adjusted comparisons indicated comparable QoL in all dimensions with the exception of physical SF-12 (p = .001) and the KDQOL effects of kidney disease in favour of self-care PD. Levels of anxiety (9.72 ± 4.90; 8.25 ± 5.22) and depression (8.63 ± 3.80; 6.35 ± 4.76) were equivalent in assisted PD and self-care PD, respectively. Assisted PD caregivers reported more task-orientated duties (p = .007), yet levels of perceived burden were equal to those reported by family members of self-care PD. Conclusion Our findings of mostly comparable patient and caregiver outcomes in assisted PD and self-care PD suggest that caregiver burden and QoL should not be a barrier to using assisted PD.