Transitioning a Research Protocol for Videosomnography to Assess Sleep and Nighttime Caregiving Activities in School-Aged Children With Developmental Disabilities During the COVID-19 Pandemic

• Published in: Journal of pediatric health care Vol. 37; no. 2; pp. 133 - 136
• Main Authors: Lee, Jiwon, Clark, Patricia C., Spratling, Regena
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01.03.2023; Published by Elsevier Inc. on behalf of National Association of Pediatric Nurse Practitioners
• Subjects: Child; children; COVID-19; Developmental Disabilities; Female; Humans; Mothers; Pandemics; research protocol; Sleep; Videosomnography; sleep; developmental disabilities; Videosomnography; children; research protocol
• ISSN: 0891-5245; 1532-656X
• DOI: 10.1016/j.pedhc.2022.11.001

The COVID-19 pandemic significantly affected children with developmental disabilities (DDs)' sleep. Videosomnography is a noninvasive, portable time-lapse video recording system to objectively obtain a child's sleep-wake behaviors and parents' caregiving activities in a natural environment. From September 2020 to February 2021, we conducted a feasibility study using actigraphy (in mothers) and videosomnography in children with DDs for seven consecutive nights to assess sleep and nighttime caregiving activities. Because of the pandemic, we developed and implemented alternative data collection strategies, such as delivering a “study package” with easy-to-follow written instructions and emailed video-recorded instructions on recording a child's sleep. We aimed to enroll 10 mothers and 10 school-aged children with DDs and achieved this goal. Nine out of 10 mothers completed video recordings of their child's sleep, with only 10% missing data for videosomnography. This paper shared adaptations to our videosomnography protocol and lessons learned.