Fostering Effective Asthma Self-Management Transfer in High-Risk Children: Gaps and Opportunities for Family Engagement

• Published in: Journal of pediatric health care Vol. 33; no. 6; pp. 684 - 693
• Main Authors: Margolis, Rachel H.F., Bellin, Melissa H., Bookman, Jaclyn R. MacFarlane, Collins, Kathryn S., Bollinger, Mary Elizabeth, Lewis-Land, Cassia, Butz, Arlene M.
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01.11.2019
• Subjects: Asthma; health beliefs; poverty; self-management; health beliefs; poverty; self-management; Asthma
• ISSN: 0891-5245; 1532-656X
• DOI: 10.1016/j.pedhc.2019.05.004

The process of self-management knowledge, behavior, and skill development in children with asthma from families with low income is understudied. Fifteen mothers of children with uncontrolled asthma participated in semistructured interviews exploring the transfer of asthma self-management responsibilities from parent to child. Team members performed thematic analysis of written transcripts. All participants were all the biological mothers and were impoverished, with most (73%) reporting an annual family income of less than $30,000. Their children ranged from 5 to 15 years old, were African American (100%), and had uncontrolled asthma based on national guidelines. Themes showed that child asthma self-management is difficult to achieve, that the transfer of asthma responsibility from mother to child is variable, and that mothers overestimate their child's developmental capacities for independent asthma self-management and have poor understanding of what well-controlled asthma means. Ongoing assessment and tailored guidance from health care providers are critical to support the pivotal role of mothers in their child's self-management development process.