Contributory Factors to Caregiver Burden in Parkinson Disease
In Parkinson disease (PD), patients often require burdensome assistance, delivered by informal caregivers (eg, spouse). Prospective questionnaire and clinical-based investigation. To investigate both patient- and caregiver-derived factors contributing to caregiver burden (CB). We assessed, in 59 pat...
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Published in | Journal of the American Medical Directors Association Vol. 17; no. 7; p. 626 |
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Main Authors | , , , |
Format | Journal Article |
Language | English |
Published |
United States
01.07.2016
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Subjects | |
Online Access | Get more information |
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Summary: | In Parkinson disease (PD), patients often require burdensome assistance, delivered by informal caregivers (eg, spouse).
Prospective questionnaire and clinical-based investigation.
To investigate both patient- and caregiver-derived factors contributing to caregiver burden (CB).
We assessed, in 59 patient-caregiver pairs, various motor, nonmotor, and cognitive symptoms as well as quality of life by standardized tests and questionnaires. Repercussions on the caregiver were evaluated by Zarit Burden Interview, Health-related Quality of Life (HrQoL), Generalized Anxiety Disorder Assessment-7, Patient Health Questionnaire-9, and the Montreal Cognitive Assessment. Transcultural comparison was ensured by validation of the tests in the 3 used languages.
Sleep problems and autonomic dysfunction of the patient strongly impact CB (r = -0.414 to -0.335, P < .01) and HrQoL of the caregiver (r = -0.335 to -0.314, P < .05). Higher CB is less strongly linked with patient's motor impairment (P < .05). Large time investment, including nocturnal care in 41% of the caregivers, strongly influences CB (P < .001). The mood, but not the cognitive status, of the caregiver is directly linked to CB and HrQoL of the caregiver (P < .01).
In PD, the CB is primarily dependent on patients' nonmotor symptoms. Patient care requires considerable time investment and can trigger depression in the caregiver. |
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ISSN: | 1538-9375 |
DOI: | 10.1016/j.jamda.2016.03.004 |