Breast cancer survivors suffering from lymphedema: What really do affect to corporeality/body image? A qualitative study

• Published in: Breast cancer research : BCR Vol. 26; no. 1; p. 47
• Main Authors: González-Fernández, Laura, Romero-Morales, Carlos, Martínez-Pascual, Beatriz, Río-González, Angela, Cerezo-Téllez, Ester, López-Martín, Inmaculada
• Format: Journal Article
• Language: English
• Published: England BioMed Central Ltd 14.03.2024; BioMed Central; BMC
• Subjects: Body Image; Breast cancer; Breast Neoplasms - complications; Breast Neoplasms - therapy; Cancer patients; Cancer Survivors; Cancer therapies; Chemotherapy; Chronic diseases; Chronic illnesses; Data collection; Disease prevention; Distorted body image; Female; Health aspects; Humans; Informed consent; Lymphedema; Lymphedema - etiology; Lymphoedema; Medical oncology; Physical therapy; Qualitative research; Quality of Life; Radiation therapy; Self esteem; Self image; Sexuality; Surgery; Womens health; Spain; Phenomenology; Qualitative research; Lymphoedema; Distorted body image; Breast cancer; Medical oncology; Physical therapy
• ISSN: 1465-542X; 1465-5411; 1465-542X
• DOI: 10.1186/s13058-024-01806-9

Breast cancer-related lymphedema is currently one of the most serious complications that most affect the quality of life of women undergoing breast cancer. The aim of this study was to explore in-depth the experience of women who suffer from lymphoedema after breast cancer and how does this condition affect corporeality, with no judgements. For this purpose, a qualitative methodology was followed. In-depth interviews, interviewer's field notes and participants' letters were used for data collection. The participants were twenty Spanish women with lymphoedema after overcome a breast cancer in the past. Healthcare specialists with experience in the topic were also included. Results showed 2 main categories: "From cancer to lymphedema, another disease another disease" and "Potential for transition and transformation towards a new way of life". As a conclusion, the difficulty in accessing adequate treatment, the need for greater awareness of lymphedema and the importance of the emotional and psychological dimension of this chronic disease. Highlighting the attitudes that these women develop for self-care and the concept of new corporeality. After breast cancer, women with lymphedema experience a drastic change that affects all areas of their lives. The adaptation process, and the search for resources and aid, play a fundamental role in overcoming this process.