Searching the Internet for Infertility Information: A Survey of Patient Needs and Preferences

• Published in: Journal of medical Internet research Vol. 21; no. 12; p. e15132
• Main Authors: Brochu, Felicia, Robins, Stephanie, Miner, Skye A, Grunberg, Paul H, Chan, Peter, Lo, Kirk, Holzer, Hananel E G, Mahutte, Neal, Ouhilal, Sophia, Tulandi, Togas, Zelkowitz, Phyllis
• Format: Journal Article
• Language: English
• Published: Canada Gunther Eysenbach MD MPH, Associate Professor 12.12.2019; JMIR Publications
• Subjects: Consumer health information; Demography; Emotions; Ethnicity; Fertility; Friendship; Gender differences; Health care; Health literacy; Infertility; Information sources; Internet; Medical personnel; Mental depression; Original Paper; Patients; Polls & surveys; Psychological distress; Social support; Treatment preferences; Womens health; patient satisfaction; stress, psychological; consumer health information; infertility; internet
• ISSN: 1438-8871; 1439-4456; 1438-8871
• DOI: 10.2196/15132

Given the complexity of infertility diagnoses and treatments and the convenience of the internet for finding health-related information, people undergoing infertility treatments often use Web-based resources to obtain infertility information and support. However, little is known about the types of information and support resources infertility patients search for on the internet and whether these resources meet their needs. The aims of this study were to (1) examine what individual factors, namely, demographic characteristics and distress, are associated with searching the internet for different types of infertility-related information and support resources and (2) determine whether Web-based resources meet the needs of patients. Men and women seeking infertility care responded to a survey assessing use of Web-based resources for accessing infertility-related information and support. The survey further assessed satisfaction with Web-based resources as well as perceived stress and depressive symptomatology. A total of 567 participants, including 254 men and 313 women, completed the survey. Most participants (490/558, 87.8%) had searched the internet for infertility information and support. Searchers were more likely to be women (P<.001), highly educated (P=.04), long-term patients (P=.03), and more distressed (P=.04). Causes of infertility, treatment options, and scientific literature about infertility were the three most frequently searched topics, whereas ways to discuss treatment with family and friends as well as surrogacy and ways to find peer support were the three least searched topics. Of those who searched the internet, 70.9% (346/488) indicated that their needs were met by Web-based information, whereas 29.1% (142/488) said that their needs were not met. Having unmet needs was related to greater levels of perceived stress (P=.005) and depressive symptomatology (P=.03). This study provides evidence for the important role of the internet in accessing infertility information and support and for the ability of Web-based resources to meet patients' needs. However, although distressed patients reported particularly high rates of searching, their needs were not always met, suggesting that they may benefit from alternative sources of information and support or guidance from health care providers when searching the internet.