Behavioral Change Factors and Retention in Web-Based Interventions for Informal Caregivers of People Living With Dementia: Scoping Review

• Published in: Journal of medical Internet research Vol. 24; no. 7; p. e38595
• Main Authors: Wu, Kuan-Ching, Su, Yan, Chu, Frances, Chen, Annie T, Zaslavsky, Oleg
• Format: Journal Article
• Language: English
• Published: Canada Gunther Eysenbach MD MPH, Associate Professor 07.07.2022; JMIR Publications
• Subjects: Adult; Adult Children; Adults; Aged; Agents; Anxiety; Behavior change; Behavior modification; Cardiovascular disease; Caregivers; Caregivers - psychology; Change agents; Classification; Cognition & reasoning; Dementia; Dementia - psychology; Dementia - therapy; Design; Feasibility studies; Humans; Internet; Internet-Based Intervention; Intervention; Literature reviews; Mental depression; Mental Health; Middle Aged; Older people; Psychological well being; Registration; Retention; Review; Social Support; Stress; Subject headings; Time limits; informal care; older adult population; taxonomy; behavior change technique; caregiver; review; web-based intervention; behavior; retention; neurological disorder; web-based; cognition; health intervention; gerontology; caregiving; informal caregivers; peer support; BCT; digital health; dementia; aging; intervention; scoping; change technique; internet; psychological health
• ISSN: 1438-8871; 1439-4456; 1438-8871
• DOI: 10.2196/38595

Web-based interventions aimed at supporting informal caregivers of people living with dementia have the potential to improve caregivers' well-being and psychological health. However, few interventions are widely implemented for this population, and none of the prior reviews have systematically examined the use of behavior change techniques (BCTs), theories, and agents in web-based interventions for informal caregivers of people living with dementia. To better understand this implementation gap, we reviewed the literature to map behavioral factors (BCTs, theories, and agents) deployed in the studies. Furthermore, because there is an emerging consensus that retention could be shaped by participant characteristics and behavioral factors, we explored relationships between these features and retention rates across studies. We pursued 3 objectives: to map behavioral factors involved in the web-based interventions for informal caregivers of people living with dementia; to examine the relationship between behavioral change elements and retention in the studies; and to examine the relationship between participant characteristics (gender, age, and spouse or adult children caregiver proportion) and study retention. We conducted a literature review using the following keywords and their corresponding Medical Subject Headings terms: dementia, caregivers, and web-based intervention. The time limits were January 1998 to March 2022. Using the BCTv1 taxonomy, which specifies active behavioral components in interventions, 2 coders collected, summarized, and analyzed the frequency distributions of BCTs. Similarly, they abstracted and analyzed participant characteristics, behavior change theories, behavior change agents, and retention rates in the studies. The average age was 61.5 (SD 7.4) years, and the average proportion of spousal informal caregivers, adult children informal caregivers, and retention rates were 51.2% (SD 24.8%), 44.8% (SD 22%), and 70.4% (SD 17%), respectively. Only 53% (17/32) of the studies used behavior change theories, but 81% (26/32) included behavior change agents. The most common BCTv1 clusters were shaping knowledge and social support. The median number of BCTv1 clusters was 5 (IQR 3). We observed a negative correlation between the proportion of spousal informal caregivers and the retention rate (r=-0.45; P=.02) and between the number of BCTv1 clusters and retention rates (r=-0.47; P=.01). We also found that the proportion of adult children informal caregivers in the study was significantly and positively correlated with the retention rate (r=0.5; P=.03). No other participant characteristics or behavioral factors were associated with retention rates. We found that almost half of the studies were not informed by behavior change theories. In addition, spousal involvement and a higher number of BCTs were each associated with lower retention rates, while the involvement of adult children caregivers in the study was associated with higher retention. In planning future studies, researchers should consider matching participant characteristics with their intended intervention as the alignment might improve their retention rates.