Valuing Attributes of Home Palliative Care With Service Users: A Pilot Discrete Choice Experiment

• Published in: Journal of pain and symptom management Vol. 54; no. 6; pp. 973 - 985
• Main Authors: Gomes, Barbara, de Brito, Maja, Sarmento, Vera P., Yi, Deokhee, Soares, Duarte, Fernandes, Jacinta, Fonseca, Bruno, Gonçalves, Edna, Ferreira, Pedro L., Higginson, Irene J.
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01.12.2017; Elsevier Limited
• Subjects: Aged; Aged, 80 and over; Attributes; Caregivers; Caregivers - psychology; Choice Behavior; Comprehension; Cross-Sectional Studies; Decision making; Discrete choice; discrete choice experiment; economics; Ethnography; Families & family life; Female; Home Care Services; Humans; Information processing; Interviews; Interviews as Topic; Judgment; Male; Middle Aged; Palliative care; Palliative Care - psychology; Patient Preference; Patients; Pilot Projects; Reaction time; Surveys and Questionnaires; Teams; Terminally Ill - psychology; Well being; Portugal; patient preference; discrete choice experiment; caregivers; economics; palliative care; Home care services
• ISSN: 0885-3924; 1873-6513
• DOI: 10.1016/j.jpainsymman.2017.05.005

Discrete choice experiment (DCE) is a quantitative method that helps determine which service attributes are most valued by people and consequently improve their well-being. The objective of this study was to test a new DCE on home palliative care (HPC). Cross-sectional survey using the DCE method with adult patients and their family caregivers, users of three HPC services in Portugal. Service attributes were based on a Cochrane review, a meta-ethnography, and the few existing DCEs on HPC: 1) team's availability, 2) support for family caregivers, 3) homecare support, 4) information and planning, and 5) waiting time. The experimental design consisted in three blocks of eight choice sets where participants chose between two service alternatives that combined different levels of each attribute. We piloted the DCE using cognitive interviewing. Interviews were analyzed for difficulties using Tourangeau's model of information processing. The DCE was conducted with 21 participants of 37 eligible (10 patients with median Palliative Performance Scale score = 45, 11 caregivers). Most participants found the DCE easy (median 2 from 1 to 5), although two patients did not finish the exercise. Key difficulties related to comprehension (e.g., waiting time sometimes understood as response time for visit instead of time from referral to care start) and judgment (e.g., indecision due to similar service alternatives). The DCE method is feasible and acceptable but not all patients are able to participate. In the main study phase, we will give more attention to the explanation of the waiting time attribute.