“Nothing About Me, Without Me”: Participatory Action Research with Self‐Help/Mutual Aid Organizations for Psychiatric Consumer/Survivors

Participatory action research with self‐help/mutual aid organizations for psychiatric consumer/survivors is reviewed. We begin by tracing the origins of and defining both participatory action research and self‐help/mutual aid. In so doing, the degree of correspondence between the assumptions/values...

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Bibliographic Details
Published inAmerican journal of community psychology Vol. 26; no. 6; pp. 881 - 912
Main Authors Nelson, Geoffrey, Ochocka, Joanna, Griffin, Kara, Lord, John
Format Journal Article
LanguageEnglish
Published New York Kluwer Academic Publishers-Plenum Publishers 01.12.1998
Springer
Plenum Press
Blackwell Science Ltd
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Summary:Participatory action research with self‐help/mutual aid organizations for psychiatric consumer/survivors is reviewed. We begin by tracing the origins of and defining both participatory action research and self‐help/mutual aid. In so doing, the degree of correspondence between the assumptions/values of participatory action research and those of self‐help/mutual aid for psychiatric consumer/survivors is examined. We argue that participatory action research and self‐help/mutual aid share four values in common: (a) empowerment, (b) supportive relationships, (c) social change, and (d) learning as an ongoing process. Next, selected examples of participatory action research with psychiatric consumer/survivor‐controlled self‐help/mutual aid organizations which illustrate these shared values are provided. We conclude with recommendations of how the key values can be promoted in both the methodological and substantive aspects of future participatory action research with self‐help/mutual aid organizations for psychiatric consumer/survivors.
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ISSN:0091-0562
1573-2770
DOI:10.1023/A:1022298129812