A community-based sleep educational intervention for children with autism spectrum disorder

• Published in: Research in autism spectrum disorders Vol. 81; p. 101719
• Main Authors: MacDonald, Lydia L., Gray, Laura, Loring, Whitney, Wyatt, Amanda, Bonnet, Kemberlee, Schlund, David, Gaston, Mary Landis, Malow, Beth A.
• Format: Journal Article
• Language: English
• Published: Netherlands Elsevier Ltd 01.03.2021
• Subjects: Autism spectrum disorder; Children’s Sleep Habits Questionnaire; Community; Sleep education; Sleep education; Children’s Sleep Habits Questionnaire; Autism spectrum disorder; Community
• ISSN: 1750-9467; 1878-0237
• DOI: 10.1016/j.rasd.2020.101719

Sleep problems are common in children with autism spectrum disorder (ASD). Sleep education, effective in improving sleep in ASD, may be difficult to access. We determined if community-based pediatric therapists could successfully deliver sleep educational interventions to caregivers of children with ASD. A seven-week feasibility study was conducted consisting of 10 children and caregivers. This feasibility study informed the development of a 16-week preliminary effectiveness study, which consisted of 33 children and caregivers. Children, ages 2–12 years, with a clinical diagnosis of autism and caregiver-reported sleep onset delay of 30 min were included. Community therapists underwent comprehensive training in sleep education and then met with caregiver participants to provide sleep education to each family. Semi-structured qualitative interviews were conducted with all families who completed study procedures. In the feasibility and preliminary effectiveness studies, child participants wore an actigraphy watch (at baseline and after sleep education) and caregivers completed the Child Sleep Habits Questionnaire and Family Inventory of Sleep Habits at baseline and after sleep education; the Child Behavior Checklist was also completed by caregivers in the preliminary effectiveness study. Educator fidelity to the manualized curriculum was maintained. Caregivers showed appropriate understanding, comfort, and implementation of the curriculum. Qualitative and quantitative measures, including caregiver surveys and actigraphy, showed improvements in child sleep and behavior. Community-based therapists can successfully deliver sleep education to families of children with ASD, which has favorable implications for improving access to care in this population.