The family of the child with special health care needs and their social relationships

to identify aspects that can influence the types of bonds developed in the social support network of family members of children with special health care needs. qualitative research conducted through interviews with 15 family members/guardians in the city of Rio de Janeiro, from January to February 2...

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Published inRevista Brasileira de Enfermagem Vol. 75Suppl 2; no. Suppl 2; p. e20210031
Main Authors Vasconcellos, Rayssa Nascimento, Souza, Maria Helena do Nascimento, Nóbrega, Vanessa Medeiros da, Collet, Neusa
Format Journal Article
LanguageEnglish
Published Brazil Associação Brasileira de Enfermagem 01.01.2022
Subjects
Brazil
Child
Delivery of Health Care
Family
Humans
Interpersonal Relations
Nursing Care
Qualitative Research
Social Networking
Social Support
Brazil
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Summary:to identify aspects that can influence the types of bonds developed in the social support network of family members of children with special health care needs. qualitative research conducted through interviews with 15 family members/guardians in the city of Rio de Janeiro, from January to February 2020. Sanicola's theoretical-methodological framework and Bardin's thematic analysis technique were used. social distancing, lack of responsibility for coordinating care, lack of supplies and lack of individualized care were weaknesses found in the families' social relationships. However, the bonds were strengthened by the relationship of familiarity and availability of professionals in the care of children with special health needs. understanding the configuration of primary and secondary social networks and the types of support offered can improve the care of children and strengthen bonds that provide security for families.
ISSN:0034-7167
1984-0446
DOI:10.1590/0034-7167-2021-0031