Childhood cancer: Impact on parents’ marital dynamics

• Published in: European journal of oncology nursing : the official journal of European Oncology Nursing Society Vol. 23; pp. 34 - 42
• Main Authors: Silva-Rodrigues, Fernanda Machado, Pan, Raquel, Pacciulio Sposito, Amanda Mota, de Andrade Alvarenga, Willyane, Nascimento, Lucila Castanheira
• Format: Journal Article
• Language: English
• Published: Scotland Elsevier Ltd 01.08.2016
• Subjects: Adolescent; Adult; Cancer; Child; Child, Preschool; Family relations; Female; Hematology, Oncology and Palliative Medicine; Humans; Infant; Male; Marriage; Middle Aged; Neoplasms - diagnosis; Neoplasms - therapy; Nursing; Parents - psychology; Pediatric nursing; Spouses; Young Adult; Brazil; Spouses; Child; Family relations; Pediatric nursing; Cancer
• ISSN: 1462-3889; 1532-2122
• DOI: 10.1016/j.ejon.2016.03.002

Abstract Purpose To explore and analyze how marital relationships are affected by the crisis generated by the diagnosis and intensive regimens required in the treatment of children with cancer. Method A descriptive study with a qualitative data analysis was conducted. In-depth individual interviews were carried out with 18 married biological parents of children with cancer. Data was analyzed using an inductive content analysis. Results The following themes represented the couples’ experiences: (1) Abrupt changes after the child's diagnosis resulting in marital strain and need to focus on the present; (2) United but distant; (3) Exchanging roles; (4) Being parents all the time; (5) Focusing on the positive side of the experience; (6) Rescuing the marital relationship. The marital relationship of parents with a child/adolescent who has cancer may undergo either positive or negative changes, with intimacy and sexuality being negatively affected by the disease. Although the relationship may be more fragile after the illness, increased mutual commitment was observed in some couples. Conclusions Results indicate that health professionals should include parents as an important focus of their care. The establishment of solid bonds to enhance couples’ communication is recommended as a way to provide anticipatory guidance to address the identified changes in marital relationships. The opportunities for dialog and partnership help couples to target their needs and recognize their strengths in order to mitigate the impact of a child's illness.