It takes a (virtual) village: crowdsourcing measurement consensus to advance survivorship care planning

• Published in: Translational behavioral medicine Vol. 5; no. 1; pp. 53 - 59
• Main Authors: Parry, Carla, Beckjord, Ellen, Moser, Richard P, Vieux, Sana N, Padgett, Lynne S, Hesse, Bradford W
• Format: Journal Article
• Language: English
• Published: Boston Springer US 01.03.2015
• Subjects: Case Study; Cross Cultural Psychology; Family Medicine; General Practice; Health Promotion and Disease Prevention; Health Psychology; Medicine; Medicine & Public Health; Public Health; Data harmonization; Survivorship care planning; Measurement consensus; Technology-mediated social participation
• ISSN: 1869-6716; 1613-9860
• DOI: 10.1007/s13142-014-0289-5

ABSTRACT We report results from the use of an innovative tool (the Grid-Enabled Measures (GEM) database) to drive consensus on the use of measures evaluating the efficacy and implementation of survivorship care plans. The goal of this initiative was to increase the use of publicly available shared measures to enable comparability across studies. Between February and August 2012, research and practice communities populated the GEM platform with constructs and measures relevant to survivorship care planning, rated the measures, and provided qualitative feedback on the quality of the measures. Fifty-one constructs and 124 measures were entered into the GEM-Care Planning workspace by participants. The greatest number of measures appeared in the domains of Health and Psychosocial Outcomes, Health Behaviors, and Coordination of Care/Transitional Care. Using technology-mediated social participation, GEM presents a novel approach to how we measure and improve the quality of survivorship care.